Neffy

Started by MandCmama, April 10, 2025, 04:18:03 PM

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MandCmama

Hi there- just wondering if insurance seems to be covering Neffy yet? I have to force myself to call our insurance, but after the hours of blood sweat and tears with xolair, this mama is exhausted!
Pennsylvania, USA
DS#1 (Born 11/2006)- allergic to peanuts and tree nuts
DS#2 (Born 3/2009)- allergic to egg, peanuts, and tree nuts (and Penicillin as of '18)

hezzier

Our insurance covered it.  I think it just depends on your insurance company.

GoingNuts

Just saw a commercial for Neffy on The Today Show!
"Speak out against the madness" - David Crosby
N.E. US

my3guys

I was just coming to post the same GN! I'm going to have to research this more...I'm still a little nervous about how much it would help if someone is experiencing anaphylaxis.

GoingNuts

An allergist who shared office space with us feels that injectable epi is preferable.   She said she would prescribe this as a back up; for example for the most needle phobic who would never carry an epi pen or Auvi.

Among other things, she was concerned that a nasal spray doesn't convey seriousness as well as a needle, and feels that people might be less likely to f/u at the hospital.  But she is also not convinced fed that it is as effective as injectable epi.
"Speak out against the madness" - David Crosby
N.E. US

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