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Topic summary

Posted by BensMom
 - January 17, 2014, 07:30:20 AM
Yeah, I can see it going through the wash. I may ask ds if he's interested in this. Sometimes he has an epi in his backpack and not clipped on. It would be nice if he had one in his pocket. Still trying to figure out how to carry the benadryl and inhaler without an epi case.
Posted by Macabre
 - January 16, 2014, 08:52:43 AM
He carries Auvis in his pocket. He hasn't liked having a pouch for a number of years. So if that's working for your DS and you think he will continue to be food in college maybe stick with that. But the Auvis work better for my DS. They Aren't noticeable in his suit coat for speech or in his jeans pocket.

The critical thing is making sure they don't get washed. :)

We use Epis at school (though all staff has had Auvi training, too). And I keep Epis in my purse (for me or for DS). He also has an Epi in his backpack.

And when he flew last week on his own he had two other Epi kits with him with two epis each--and he have those to teachers once he saw them at the hotel.
Posted by BensMom
 - January 16, 2014, 07:45:18 AM
Yeah, it worries me too.

Might have to try the auvi-q. One thing that I like about the epis is that he has them in a carrying pouch marked as an allergy med pouch. He can fit some benadryl and even jam his inhaler in there and it's visible to others. He doesn't seem to mind it.

There must be a thread somewhere about various ways kids carry meds. Can someone point me there? Seems like he could fit one auvi-q in his pocket, like a wallet, but not two, and where would he put the benadryl? Hmmm.....

Mac, what do you mean you use epis everywhere else--when does your son carry epis vs auvis?
Posted by GoingNuts
 - January 16, 2014, 07:40:30 AM
Oy, I have tried to instill in DS the need to mention his allergies even when he is certain there is no need to - because without that, there's no telling how his food is handled (though let's be honest, there's never any telling how your food is handled when you eat out).

This scares me too.  When I try to talk to DS about this he glibly tells me to "check the scoreboard", meaning he hasn't had a reaction since he was 10.  I counter by telling him about Brian Hom and others.  He looks at me like I'm an alien.

This terrifies me.

Posted by Macabre
 - January 16, 2014, 12:24:18 AM
And that is why I think you should look into the AuviQ (there's a coupon that may help).  You'll need a script for it. It's so much easier for boys to carry two Auvis than two Epis.  We still use Epis everywhere else--just not in DS' pockets 99% of the time.
Posted by CMdeux
 - January 15, 2014, 10:52:12 PM
It seems awfully worrying that he's had two such incidents in such a short period of time, though-- and without taking more risks than usual.

That might indicate a threshold shift.  Wow, what horrible timing, too, with him being about to go to college.  Have you talked to him about that possibility?  This is so concerning for ME, and he's not even my kid, Bensmom... it's just that so many young men who wind up being news items have this kind of pattern-- where management was stable and safe for well, pretty much forever-- and shifted under them without much warning in their late teens.

:-[
Posted by BensMom
 - January 15, 2014, 08:32:50 PM
He had Pasta Fresca which is fine ingredient-wise. No allergy aware signs that he saw and he didn't mention his allergy. I told him he shouldn't eat there anymore.
Posted by BensMom
 - January 15, 2014, 08:22:41 PM
He always carries two epis and benadryl. The quick-melt ones weren't really working (kept getting crushed) so now he has liquid capsules. Just seemed like they'd absorb faster, but I don't know.
Posted by Macabre
 - January 15, 2014, 06:08:44 PM
My sense is that it depends on the particular restaurant--how they are with FAs.

Bensmom, I would really suspect a reaction.

I can't remember--is he good about carrying Epis? Does he carry the AuviQs? My DS loves them. The print rubs off, so well put clear contact paper over the instructions.
Posted by BensMom
 - January 15, 2014, 05:08:12 PM
Yeah, that's fine. Where is that thread?

He is PA--that's what he had an oral challenge for. Reacted to a small amount, but prior to being diagnosed had regularly eaten granola bars containing peanut flour.

I was glad he recognized this as a potential reaction since he's never reacted that way and to be honest, I don't ever really recall talking to him about that particular symptom. He's eaten there before with no problem. Of course, that doesn't mean anything. And I was just thinking that most of the other times he had Chinese food, it was at a buffet at our temple and I always told the guy in charge to tell the restaurant to use clean pans--that there are nut and shellfish allergies in our congregation. And it was a buffet early in the day so the food was probably prepared before they even opened and before they'd prepared any other food that day.
Posted by CMdeux
 - January 15, 2014, 04:28:39 PM
I can do it.  Bensmom?   Is that okay with you?
Posted by Macabre
 - January 15, 2014, 04:24:49 PM
Yes. And actually, this would be ever so helpful in the Noodles & Co thread. Some folks go there. Others don't. DS wants to try it, but seeing this yikes.


Do you mind if we move it?  And CM's response.

And saying that, I'm not in a position to do it right now.
Posted by CMdeux
 - January 15, 2014, 04:08:43 PM
Wow-- yeah, worryingly, I'd say that sounds too much to be coincidence.  Sounds completely in keeping with his threshold being lower than expected at the moment, and catching him by surprise.

Is he PA, do you know?    Time to do some digging-- start by independently recording everything you remember about the events/activities/food in order to eliminate impossible connections.

Posted by BensMom
 - January 15, 2014, 03:55:51 PM


DS ate at Noodles and Company today. Not sure exactly what he had, but there are only 3 things listed that have peanuts and I'm sure he didn't eat any of those. There are about 5 things listed with tree nuts and again, I'll ask exactly what he had, but probably not those.

He said he felt nauseous after he ate. He's never reacted to x-contamination (except recently--more on that in a second) and he's never ever reacted with nausea. Could this have been a reaction? He thought it could be and took Benadryl. I didn't ask how long it took to feel better--I'll have to check on that, but he's at work now.

A little over a week ago, we ordered Chinese food when he wasn't home. The next day he wanted leftovers and I let him because he's had food from this place before--rarely, but maybe 3 times in the past 5 or 6 years--he's never reacted, and we were all home with him if anything went wrong. He said his lip was swelling a little (not enough to really tell by looking, but he could feel it) so I gave him benadryl and told him he's really not supposed to eat Chinese food and I only let him because of the above circumstances but really, he can't do that. I know--stupid. But we've always kind of gone by the laxest comfort zone as he got older and tighten up as necessary. We've never actually had to tighten up until now.

So, back to Noodles and Co--think that was a reaction? I'm assuming he would have mentioned if anyone else felt nauseated. I'll ask more tonight.

By the way, his reaction history: bump on lip after eating walnuts when he was 4. Itchy mouth with some fruit. Bump on lip from banana. Throat tight (that allergy cough) during oral challenge. Has never used epi.
Posted by GoingNuts
 - August 09, 2013, 10:25:49 AM
Thanks everyone. It seems like just as with other chains, they vary tremendously.