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Posted by twinturbo
 - January 23, 2014, 04:00:17 PM
Food Allergy School Health Plans: 504 vs IHCP (Video and Resources)

The link to register for the epinephrine webinar is down the page. I'll cross-post this in the Main epi thread.

Everything You Wanted to Know About Epinephrine and More 
Wednesday, February 26, 2014 at 7pm Eastern (4pm Pacific)

Register: https://www4.gotomeeting.com/register/170327023



Angela Nace, PharmD, author of our very popular Epinephrine Comparison blog post, and Michael Pistiner, MD, MMSc, Chair of KFA's Medical Advisory Team and frequent guest speaker on our webinar series, will answer your questions about epinephrine.  Submit your questions in advance on the registration.  We thank Mylan Specialty for sponsoring this event.
Posted by maeve
 - January 16, 2014, 06:07:16 PM
Quote from: twinturbo on January 15, 2014, 11:58:32 AM
Ms. Francoeur's presentation was the best singular presentation I've heard/seen. What I found unique and valuable was how completely (and seamlessly) she presented legal interpretation with advocacy never shying away from or overlooking the traditionally uncovered areas like contextualizing accommodations rock solid in FAPE, and fair warning that DOE and federal courts currently disagree on the reasonable standard.

I highly recommend watching once KFA posts it. I think there are a couple of gaps I personally either fill in, or differentiate as her personal opinion rather than legal expertise but overall very much appreciative to KFA on this. Never really knew of them before.

I agree. It was a thorough and highly useful webinar.  I loved how she addressed whether other students' needs have to be taken into consideration when developing accommodations. They do not have to be taken into consideration (nor does "tradition" or the "way we've always done things").

I also love how she reinforced that the school cannot compare your child to another with food allergies, so there cannot legally be any "Well, Janie's family didn't ask for a nut-free classroom."

She reinforced documenting all your communication with the school so that you have that information all together should you have to go up the chain. She said you have the legal right to stop the 504 meeting if you arrive at the meeting and the school system has brought an attorney without informing you.
Posted by ajasfolks2
 - January 16, 2014, 12:04:18 PM
OH, gosh TT!

Sure wish I could have done the webinar . . . glad you helped educate . . . guess they accommodated you by not excluding you from the rest of the webinar.   ;D
Posted by twinturbo
 - January 15, 2014, 08:17:17 PM
It'll be interesting if they post the audience questions. Sometimes I don't know when to shut up (or restrain from trolling) so as the attorney is advising offering "help" to the school in return for accommodations I asked if that advice pertained only to LTFA or she advised for all other 504-qualifying disabilities.

She also wasn't sure about extra-curriculars wrt to 504 accommodations so I "helped" by posting about Significant Assistance. At least I didn't get kicked out.
Posted by ajasfolks2
 - January 15, 2014, 07:51:16 PM
One more thought -- the reminder email I got for the event had subject line "Does your child need a 504 plan for school?".

And while that may have been the "catch line" to get folks to read the email, it still bothers me tonight. One of the MAJOR challenges has been to get parents and the schools to STOP thinking in terms of "need" (and questioning "need") but rather in terms of "qualify" and rights!! 

And I am reminded again of that magical thread "Why NOT obtaining Section 504 for your child is a DISSERVICE to your child . . . a disservice to YOU, YOUR SCHOOL, and above all else YOUR CHILD."  (started on 05-14-05 by Gail at the "old, old place" . . . )



Just my .02-worth.  Shiny pennies, IMHO.   ;)
Posted by twinturbo
 - January 15, 2014, 12:17:12 PM
I know the moderator at the end was in slight shock in a positive way about how far civil rights laws have advanced wrt to disability in education for students who are afflicted by food protein induced anaphylaxis to put it in my own words. In reading the history of special education and disability now after gaining familiarity with standing laws and developments as they unfold--I do now better understand where a lot of them were at as parents 10, 15, 20 years ago. All the progress we have now for all students with disability and/or special education needs is a very recent steamrolling progression.

I have some follow up questions for Ms. Francoeur but if Links doesn't beat me to the punch I'll look for the webinar recording once it's available. My personal goal remains getting an OCR staff attorney to do one for us one day. Until then, though.
Posted by ajasfolks2
 - January 15, 2014, 12:08:03 PM
PS -- I am heartened to see KFA now going to this length to support our kids' rights and educate as to rights . . . for many years there was much discouragement of discussion as to 504s on their forum.   ;)

It was all "too adversarial", KWIM?

;D
Posted by ajasfolks2
 - January 15, 2014, 12:05:35 PM
Twinturbo, thanks for report on this.  (Wanted to attend but was being kid-taxi-driver-avoider-of-horse-trailers much of last night.)

If anyone has link to posted full webinar, please get it in here!!

Looking forward to reading.
Posted by twinturbo
 - January 15, 2014, 11:58:32 AM
Ms. Francoeur's presentation was the best singular presentation I've heard/seen. What I found unique and valuable was how completely (and seamlessly) she presented legal interpretation with advocacy never shying away from or overlooking the traditionally uncovered areas like contextualizing accommodations rock solid in FAPE, and fair warning that DOE and federal courts currently disagree on the reasonable standard.

I highly recommend watching once KFA posts it. I think there are a couple of gaps I personally either fill in, or differentiate as her personal opinion rather than legal expertise but overall very much appreciative to KFA on this. Never really knew of them before.
Posted by twinturbo
 - January 14, 2014, 06:25:47 PM
Utterly fantastic background on what happened to bring about "reasonable" wrt undue burden between US DOE vs fed court. Stick to FAPE  and "necessary". Don't go down the reasonable and undue burden road.
Posted by twinturbo
 - January 14, 2014, 06:09:00 PM
Laurel Francoeur, Esq. Extremely impressive C.V. I may buy her book.
Posted by twinturbo
 - January 14, 2014, 06:03:11 PM
Resisting the urge to type "What are my lucky numbers today?" in the question box.
Posted by maeve
 - January 14, 2014, 08:44:44 AM
I attended last month's webinar with Dr. Wood, and it was great. (Oh and I one a door prize from Enjoy Life.) I'm registered for tonight's webinar.
Posted by twinturbo
 - January 13, 2014, 11:03:58 PM
bumping because it's tomorrow.