- Welcome to Food Allergy Support.
Posted by nonuteen
- April 04, 2013, 10:10:47 AMRebekahc- Thank you for sharing your experience. I am sorry you had to go go through that.
Dr. keeps assuring me how safe Lupron is and while she has been supportive of my choice not to do it this far, I can feel that she is now thinking I am being too conservative and is trying to convince me. It's such a hard decision...
So of course if easing off soy could help ease any of her symptoms, I would be all for it!!:) Of course, the bleeding disorder is a whole other issue...
Thank you for the link to MAJIC. I had never heard of it and will look into it. All the Dr. gave me were big pamplets about Lupron (of course from the drug manufacturer of Lupron
Dr. keeps assuring me how safe Lupron is and while she has been supportive of my choice not to do it this far, I can feel that she is now thinking I am being too conservative and is trying to convince me. It's such a hard decision...
So of course if easing off soy could help ease any of her symptoms, I would be all for it!!:) Of course, the bleeding disorder is a whole other issue...
Thank you for the link to MAJIC. I had never heard of it and will look into it. All the Dr. gave me were big pamplets about Lupron (of course from the drug manufacturer of Lupron
Posted by rebekahc
- April 02, 2013, 01:08:06 PMI had Lupron Depo once a month for 6 months to give me "menopause" after I had laser surgery for my endometriosis. My doctor felt that would help any microscopic cells die off and keep the endometriosis from recurring (which didn't work).
The injections are very painful, so even without the side effects, I would be hesitant for a child to have to get them regularly unless absolutely necessary.
My doctor has told me that the Lupron is responsible for basically killing my metabolism. I gained 40 pounds while on it and can't lose it no matter what I do. My doctor says that unless I eat only 500-800 calories a day, I will not be able to lose weight. Obviously, that's not sustainable or realistic.
I have bone density loss and was dx'ed with osteopenia when I was in my early 30s.
Before Lupron I never had ovarian cysts, but have had them several times a year since then (this one, I'm not positive there's any correlation).
My long term side effects aren't too bad, but once my doctor told me my weight would never come off, I looked further into Lupron side effects and it gave me some some pretty serious concerns.
Since we were taking the wait and see approach with DD's PP, and reducing the soy seemed to help, I didn't really research very much into pediatric use of Lupron and possible long-term effects. Are you a member of MAGIC? I know they deal with PP and they may have a PP forum where you could get in touch with others who chose (or didn't) to use Lupron.
The injections are very painful, so even without the side effects, I would be hesitant for a child to have to get them regularly unless absolutely necessary.
My doctor has told me that the Lupron is responsible for basically killing my metabolism. I gained 40 pounds while on it and can't lose it no matter what I do. My doctor says that unless I eat only 500-800 calories a day, I will not be able to lose weight. Obviously, that's not sustainable or realistic.
I have bone density loss and was dx'ed with osteopenia when I was in my early 30s.
Before Lupron I never had ovarian cysts, but have had them several times a year since then (this one, I'm not positive there's any correlation).
My long term side effects aren't too bad, but once my doctor told me my weight would never come off, I looked further into Lupron side effects and it gave me some some pretty serious concerns.
Since we were taking the wait and see approach with DD's PP, and reducing the soy seemed to help, I didn't really research very much into pediatric use of Lupron and possible long-term effects. Are you a member of MAGIC? I know they deal with PP and they may have a PP forum where you could get in touch with others who chose (or didn't) to use Lupron.
Posted by nonuteen
- April 02, 2013, 11:49:39 AMrebekahc- Do you mind telling me what side effects you had? Endocrinologist keeps telling me how "safe" Lupron is and that it is better than birth control pills at this age. She is still pushing for me to have her get the Lupron inj. (Depot every 3 mos). Unfortunetely,may have to do something due to complications with periods (bleeding disorder).
Sorry for any confusion, I always have issues posting too much personal stuff online so try to keep it general but think it ends up causing confusion. I need to get over my internet phobia:)
Sorry for any confusion, I always have issues posting too much personal stuff online so try to keep it general but think it ends up causing confusion. I need to get over my internet phobia:)
Posted by rebekahc
- April 02, 2013, 10:53:01 AMQuote from: nonuteen on April 02, 2013, 09:42:47 AM
Rebekahc- She was actually dx'd years ago and started very young. Been researching ever since (as I hated the idea of Lupron inj). We still follow with the endocrinologist due to complications she is having.
I see - I thought since you were looking at soy now, it was a recent diagnosis.
Yes, Lupron inj. are nasty, nasty things to be avoided at all costs IMO. I had them years ago for endometriosis, but I think they caused more problems than they solved. When we were looking at PP with our DD, I knew we would NOT want to do Lupron unless we absolutely had to.
Posted by nonuteen
- April 02, 2013, 09:49:31 AMYouknowwho- We also eat very little processed foods. They say the soy can act as a natural estrogen so it is the soy butter I was concerned with as most their other foods are fruits, veggies, lean protein, whole grains. Aside from the soy butter, they really don't eat other soy products since oldest dd is allergic to some soy ingredients and I don't use it in home meals.
Seems like there are so many "studies" about different foods that it is hard to decide which foods are best or possible factors in medical issues as I do believe that diet is a very important part of health.
I guess it couldn't hurt to try to get them more used to the sunbutter and shelve the soy for awhile. Think I was hesitant to do that unless I absolutely had a valid reason since we are already limited.
* I know what are saying about processed foods and agree. Most of the things I have read cited processed foods, junk, hormones in milk as possible causes for early puberty. First thing endocrinologist told us to do was stay away from all sugar and start counting carbs. She said the #1 thing that would help us is a high protein, lower carb diet.
Seems like there are so many "studies" about different foods that it is hard to decide which foods are best or possible factors in medical issues as I do believe that diet is a very important part of health.
I guess it couldn't hurt to try to get them more used to the sunbutter and shelve the soy for awhile. Think I was hesitant to do that unless I absolutely had a valid reason since we are already limited.
* I know what are saying about processed foods and agree. Most of the things I have read cited processed foods, junk, hormones in milk as possible causes for early puberty. First thing endocrinologist told us to do was stay away from all sugar and start counting carbs. She said the #1 thing that would help us is a high protein, lower carb diet.
Posted by nonuteen
- April 02, 2013, 09:42:47 AMRebekahc- She was actually dx'd years ago and started very young. Been researching ever since (as I hated the idea of Lupron inj). We still follow with the endocrinologist due to complications she is having.
Posted by hezzier
- April 02, 2013, 09:34:32 AMI read similar things to rebekahc, but it was years ago when DS was a baby.
Posted by YouKnowWho
- April 02, 2013, 09:30:32 AMIs it soy or is it processed foods?
What little soy my kids have come in the way of milk and cheese. We eat differently than the average American because we eat very little processed food as a result of allergies and diet changes for the family. Shopping the perimeter of a store for 90% of our shopping trips and avoiding convenience foods for the most part has helped eliminate that. I won't say we don't eat out, because we do but at the same time - we eat out way less than the average American.
Coming back to read my post after a shower - I realize that I sounded very condescending. And I apologize because it was not meant like that as all.
But you read this studies and the source of soy is often not clarified. You also hear that kids are eating Happy Meals 2-3 times per week. Hmmm, so is it the soy or is it the processed food. I would love to be processed food free but my kids think ketchup and bbq sauce is a food group. And then there is the allergy factor because three of us have conflicting and one of them is not cost prohibitive nor does it make it easy to make food from scratch in the home. So yes, I do frozen pizzas for two members of the family and another brand for the rest. And I do buy premade bread because one reacts to gluten in the air and frankly gluten/eggfree bread is a stinker to make.
Regardless though - allergies in of themselves limit our diets and choices so that we often don't fit the average model.
What little soy my kids have come in the way of milk and cheese. We eat differently than the average American because we eat very little processed food as a result of allergies and diet changes for the family. Shopping the perimeter of a store for 90% of our shopping trips and avoiding convenience foods for the most part has helped eliminate that. I won't say we don't eat out, because we do but at the same time - we eat out way less than the average American.
Coming back to read my post after a shower - I realize that I sounded very condescending. And I apologize because it was not meant like that as all.
But you read this studies and the source of soy is often not clarified. You also hear that kids are eating Happy Meals 2-3 times per week. Hmmm, so is it the soy or is it the processed food. I would love to be processed food free but my kids think ketchup and bbq sauce is a food group. And then there is the allergy factor because three of us have conflicting and one of them is not cost prohibitive nor does it make it easy to make food from scratch in the home. So yes, I do frozen pizzas for two members of the family and another brand for the rest. And I do buy premade bread because one reacts to gluten in the air and frankly gluten/eggfree bread is a stinker to make.
Regardless though - allergies in of themselves limit our diets and choices so that we often don't fit the average model.
Posted by rebekahc
- April 02, 2013, 08:42:22 AMWhen we were dealing with the possibility of precocious puberty in DD, I was also concerned about soy. She started showing symptoms around the time we switched her from cow's milk to soy milk. At that time, I read that soy can act as estrogen. We reduced her soy milk intake and tried to limit soy in other areas of her diet (since we didn't want to completely remove soy milk) and her symptoms of PP also went away. Was there really a correlation? Who knows. 
I will say I'm surprised your DD (I'm guessing she's either 9 or 11 years old) would be dx'ed with PP. Our endocrinologist said that even age 7 is within normal limits and would not be considered PP (my DD was 6.5 years at the time we were having concerns).
I will say I'm surprised your DD (I'm guessing she's either 9 or 11 years old) would be dx'ed with PP. Our endocrinologist said that even age 7 is within normal limits and would not be considered PP (my DD was 6.5 years at the time we were having concerns).
Posted by Ra3chel
- April 01, 2013, 06:48:38 PMQuote from: twinturbo on April 01, 2013, 05:16:33 PM
No, I don't think soy necessarily causes health issues but yes, I don't think it's unreasonable to diversify away from daily soybutter when alternatives are available. IMHO.
This. In pretty much all of what I've seen, the issue wasn't "soy is unhealthy," but "diets too saturated with soy are unhealthy / less healthy." And that's true of almost any single thing. I think it's getting played up with soy b/c it's added to so many things you wouldn't necessarily expect to find it in, so people tend to eat more of it than they realize.
Posted by twinturbo
- April 01, 2013, 05:16:33 PMSometimes we need sanity savers when it comes to the unanswerable parts of medicine. Just think of it as moderating intake or balancing or diversifying and swap the soybutter out. Shelve it, come back to it later if the desire to return to it comes up.
I did hear some sort of false rumor that Asians eat only fermented soy as a purported reason why Asia isn't affected by soy in the same manner. I'd ballpark that as 50-50. There are plenty of fermented soy ingredients/delicacies but they tend to be used in smaller portion than straight tofu or fresh soy milk because the fermentation is like wine, imparts strong flavor so it's not a good base--typically. And as far as US soy beans many Asian countries have been importing US grown soy for quite a while increasingly over time.
No, I don't think soy necessarily causes health issues but yes, I don't think it's unreasonable to diversify away from daily soybutter when alternatives are available. IMHO.
I did hear some sort of false rumor that Asians eat only fermented soy as a purported reason why Asia isn't affected by soy in the same manner. I'd ballpark that as 50-50. There are plenty of fermented soy ingredients/delicacies but they tend to be used in smaller portion than straight tofu or fresh soy milk because the fermentation is like wine, imparts strong flavor so it's not a good base--typically. And as far as US soy beans many Asian countries have been importing US grown soy for quite a while increasingly over time.
No, I don't think soy necessarily causes health issues but yes, I don't think it's unreasonable to diversify away from daily soybutter when alternatives are available. IMHO.
Posted by nonuteen
- April 01, 2013, 04:25:54 PMtwinturbo- since my daughter was diagnosed with precocious puberty, I started researching causes/ways to halt naturally (if possible) and many of the articles I've read have made mention of soy. Problem being is that I can find just as many stating that none of the research is proven and soy is fine. 
That is why I wanted to see if anyone else here had opinions either way on using the soybutter as a DAILY pb alternative. (My oldest is actually allergic to soy and can't eat. Younger two have NKFA but we don't eat peanuts/treenuts)
That is why I wanted to see if anyone else here had opinions either way on using the soybutter as a DAILY pb alternative. (My oldest is actually allergic to soy and can't eat. Younger two have NKFA but we don't eat peanuts/treenuts)
Posted by twinturbo
- April 01, 2013, 04:02:06 PMWhat articles are these?
Posted by nonuteen
- April 01, 2013, 03:40:32 PMMy oldest loves Sunbutter but the younger two really prefer soybutter. They eat it every day for lunch but I keep seeing all the articles saying soy is not the health food has been marketed as. It concerns me that there is a possibility that it could disrupt thyroid function or cause endocrine/early puberty issues. I've been trying to do more research. It seems like it is so hard these days to figure out what is healthy or unhealthy anymore....geesh.
Posted by Jessica
- April 01, 2013, 01:42:06 PMI've seen stories about it not being healthy too. Mostly on facebook. My dd does use soybutter but not in great quantities.