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Posted by TwoDDs
 - March 04, 2014, 10:01:29 AM
Quote from: twinturbo on March 02, 2014, 11:22:54 AM
Follow orders of total avoidance makes you a helicopter parent.
Taking chances on allergens by not totally avoiding makes you an abusive parent.
Avoid peanuts during pregnancy.
Wait, no, eat peanuts during pregnancy.
OIT works.
Wait, OIT might not work as well as we thought.
Oral challenge means a pass.
Wait, we should define pass more clearly.
Lick pacifiers, get licked by dogs, fecal stuff, live on a farm. Maybe. We're not really sure.

Oh crap, nothing is actually working. Let's see if it's stressful for the 10,001st time.

Likedy Like Like Like
Posted by twinturbo
 - March 02, 2014, 11:22:54 AM
Follow orders of total avoidance makes you a helicopter parent.
Taking chances on allergens by not totally avoiding makes you an abusive parent.
Avoid peanuts during pregnancy.
Wait, no, eat peanuts during pregnancy.
OIT works.
Wait, OIT might not work as well as we thought.
Oral challenge means a pass.
Wait, we should define pass more clearly.
Lick pacifiers, get licked by dogs, fecal stuff, live on a farm. Maybe. We're not really sure.

Oh crap, nothing is actually working. Let's see if it's stressful for the 10,001st time.
Posted by CMdeux
 - March 02, 2014, 10:54:10 AM
Quote from: aggiedog on March 01, 2014, 03:50:07 PM
Sadly, that does not surprise me even a little bit.  :disappointed:

It doesn't me, either-- but I have to say that I think part of the problem there is that families ARE NOT getting some messages.

Quote
• 38 percent saw that a child was now tolerating either baked milk or egg and decided to try it in an unbaked form;

• 29 percent said they'd given a food because the child hadn't had symptoms on a previous exposure;

• 25 percent believed that small exposures would speed the resolution of the allergy;

• 24 percent gave a food because their child's past reaction hadn't been severe;

• 15 percent knowingly gave the food because they didn't believe the diagnosis of food allergy;

How many people here have done one or more of those things at some point, hmmm?

I'd venture to say that MOST parents have at least thought about those things.

Testing-only diagnoses, no agreement about 'best practices' in diagnosis, and highly variable messages about management? Yeah-- parents DO feel like they are on their own with this stuff.  The harsh truth is that all but a very lucky few families actually are the only experts they'll ever meet on the subject of food allergies-- regardless of how little they really know.

:-[

That problem kills people, and as far as I can tell, it's going to continue to kill them until the basic research trickles into clinical practice in another generation.



Posted by krasota
 - March 02, 2014, 10:18:09 AM
Ugh.  I was hoping for a helpful article about the conundrum of introducing the *parents'* allergens to the kids in a way that keeps Mom & Dad safe.  :p
Posted by aggiedog
 - March 01, 2014, 03:50:07 PM
Sadly, that does not surprise me even a little bit.  :disappointed: