Quote from: Macabre on May 05, 2014, 06:11:40 PM
Those eyelashes and eyes. He is gorgeous.

I love everything about his eyes, the lashes, the twinkle and the little laugh he can let out with him without uttering a sound.  And in so many ways, truly the window to what is on his mind.

I know there is idiopathic anaphylaxis, but would idiopathic urticaria create that throat lump?

Those eyelashes and eyes. He is gorgeous.

That I don't know but DS2 does not get red in the face due to exposure. The cold reactions present just like food reactions. They are no different but for the trigger and maybe severity limited to area of exposure. It's why he can't do sorbet or other items safe but frozen. The risk of anaphylaxis from cold ingestion is there. Contact from cold will produce hives with some flare around wheal but not red patches of skin without hives. It's a leading reason we relocated to DH's hometown the weather is relatively mild year round.

Given that peanut is the only known allergen the statistical likelihood is higher there, it would have to be ruled out. There are cold urticaria tests it's just applying ice to forearm for 5 min.

TT - he gets slapped cheek syndrome in extremely cold weather.  Even if we are just venturing from the car to inside a store.  At best, he tolerates about a half hour in the snow. 

   Yes, wild speculation definitely sucks.  Hopefully your allergist will have a quick answer for you.

Has he ever played in the snow? DS2 does have temp change that has resulted in two ER runs before we found out it was not food. He hived magnificently from the ocean (temp) and from snow exposure on skin. For this reason he can't have cold drinks or food. Which ironically goes along nicely with the thought in Chinese medicine (cold food or water is bad for health).

But it's predictable. Cold wind on exposed body parts, snow/ice on exposed parts, cold water, cold lotion after a hot bath. The most he can tolerate is maybe a slightly cool watered down juice.

It seems to be heat related - he does not tolerate changes in temps at all.  He is the kid that is bright red when most people find it comfortable outside.  He was outside both days, prior to coming in to eat (about 1-2pm).  We have had the a/c on for a few weeks now.

Our pollen counts are dropping to almost nothing after cresting into the thousands, but it's been down for almost a week.

We went through this two years ago with him constantly hiving up after having been in the pool and coming in.  After a few trips to the ER because it scared the you know what out of me and consulting with allergist - it was blamed on temp related urticaria.  Then we dealt with lip swelling that I thought might be allergy related but again, temp related urticaria.

The bird class today was canceled - taught by Audobon, no bird food or peanuts allowed because we are dealing with multiple food allergies within the group.

He was the one that consumed most of the bread loaf prior to Saturday (seedless rye).  He has never had issues with wheat, rye, barley.  I do note behavioural issues with dyes and sugar.  Both DH and I test negative on Celiac bloodwork (we were concerned that my other son might have Celiac on top of the ltfa). 

Allergist is closed - will call again tomorrow because wild speculating sucks.

Urticaria is just the medical term for hives.  I know idiopathic urticaria exists, but for your DS it really seems to be tied to either heat or food (or a combination of both).  There is a wheat/exercise combo allergic reaction, I wonder if your DS has something with heat and a specific food/spice/seed? Has he shown any other signs of heat urticaria (other than hot foods)?  Low 80's isn't really all that hot except that he's not used to higher temps yet since it's just starting to really warm up.  Was he outside after eating lunch on both Sat and Sun?  Did he eat before the trip to the bird center?

Or maybe... Birding class = lots of bird seed/nut contamination of the area?  Mustard's a seed - what about the bread, was it seeded rye?  Even if it wasn't, the bread was most likely seed contaminated.  Full allergy cup and a high threshold seed allergy?

No quoting please, I will remove.




Allergist said uticaria, not food.

This is the DS that had lip swelling from soup (an other things around that same time), right?  Did you ever figure out what it was?  IRRC, there was some suspicion of mushroom and/or heat urticaria?  Was it the same time of year when that was going on as now?  Maybe the two are related - it's just a matter of finding the common thread...

I think I have decided today is the day, I will have a nervous breakdown. 

We had a birding class today in a recreation center attached to a neighborhood.  Class was canceled so we decided to stay and play.  Within an hour, he was head to toe hives.

This doesn't scream food anymore to me.  This screams uticaria (or however the heck you spell it).  This would not be our first rodeo.  But I am terrified if it is.

I can't think of an answer that does not suck.

That sort of reaction with objective symptoms like head to toe hives + O2 at 90% with reported throat says gross ingestion to me.

It occurred to me w/family history maybe chronic hives, temp change, etc but not how it presented in conjunction with the other symptoms.

If I assume the reaction was provoked by a gross ingestion--then what?

Peanut has that sort of potency in unseen amounts. I can guarantee that if my DS1, Mac's DS and anyone else with a microtheshold were in that kitchen they'd all react if a meal was prepared there. Which paradoxically leads me to believe that it's not peanut because there's no way he's not coming into contact with it through contamination. Yet, thus far it is the only known allergen DS2 has and it is a POTENT one.

Mustard is the one I keep coming back to. But why now? Pollen season, allergy cup full? Two things at once PB contamination and mustard during pollen?

Those of us who have not been able to co-exist with peanut butter in the house have usually found out the hard way. DS1 was around peanuts quite a bit daily until one day he anaphylaxed-hard. Same for DS2 w/barley and cow's milk.

The A&W was a bottle bought in the store.

I say new formula because it listed the quilallia but the reality is that is problem the same formula but decided to add that as opposed to saying natural flavorings.  Other bottles just say natural flavorings.

He has had Barq's in restaurants before, and possibly Mug.  But I have only bought store brands before.

I'm sorry, YKW.  Mystery reactions are the worst-- so difficult to figure out.  No advice, just