Quote"Don't assume you know whether a piece of #candy is allergen-free or not" Dr. Scott Sicherer on what to know mshs.co/1xezFxi #allergy

Quote"It may seem logical that there'd be no dairy in a sucker candy, but until you see it on the package, you don't know for sure," he says.

Quoteas chefs around the country are learning, pretty much anything goes

Quote
Better to be occasionally cheated than perpetually suspicious. ...
by B. C. Forbes

QuoteI'll try to reply without referencing anything specific in case you do delete what you shared, but the idea that allergists are willing to tell us "Avoid, Avoid, Avoid" but then when I approach them about labeling issues they tell me they either don't discuss them with patients or patients don't come to them with the concerns and it makes me wonder, you know?  It took us three tries to find an allergist that wasn't casual about the idea of anaphylaxis, they had this notion that if you have the epi you'll be fine but I kept saying "I don't wan't my child to react in the first place."  Recently there was an article on Asthma Allergies Children where they talked about a child being exposed to an allergen and the parent finding out that way that the blood test had been inaccurate - it reminded me of meeting with our allergist and having him say that I was "too good of a mom" when it came to avoidance because most families discover false positives through accidental exposure so we should have found out about the allergies E did outgrow, sooner.  There's no winning, is there? 

Quote from: LinksEtc on July 01, 2014, 02:13:01 PM
Tweeted by @pash22

"Can patients get and use the information they need?"
http://www.kpmg.com/global/en/issuesandinsights/articlespublications/what-works/creating-new-value-with-patients/articles/pages/can-patients-get-and-use-information.aspx?utm_medium=social‐media&utm_campaign=2014-hc-what-works&utm_source=twitter&utm_content=gbl+2014+jul+27&utm_term=info+tw+promo

QuotePatients need information that is often very different from the information that doctors think they need.

Our research into patient groups across the world consistently showed that, what patients felt was crucial information was ignored by clinicians. In fact for some patients groups the biggest gap between what patients needed and what they got was information.

Quote from: LinksEtc on October 02, 2014, 06:26:42 AM

Quote from: Janelle205 on October 02, 2014, 01:55:04 AM
This is definitely minor, but...

I HATE it when companies label their alternative food products as 'Allergen Free'.  People can be allergic to pretty much anything.  People can be severely allergic to pretty much anything.  'Allergy friendly' is fine with me.  I understand that I don't exactly have the most common allergens.

Your apple flour is NOT allergen free.  The eight epi-pens in my house say otherwise, thanks.

I don't think that this is minor at all ... it's a great point.  If somebody new to allergies (with a non-top8) sees & believes that "allergen free" stuff, they could have a rxn.

Quote from: SilverLining on December 18, 2013, 09:55:20 PM
Pfft!  The allergist I was seeing said "those peanut parents" were all over-reacting when they talked about cross contamination.  Obviously he was no help.  I never saw a mental health professional.  I was able to get myself to a place I 'm comfortable with.

QuoteIf you have any allergen concerns outside of the Top 8 Food Allergens, we recommend you do not consume the product and consult your physician.

QuoteCan you just imagine that conversation?



"Hi, Dr. Smith. We're here for our appointment. Good to see you again."


"Nice to see you, too. What are we seeing you for today?"


"Well, since {DD} has a sesame allergy, Conagra told me that we should."

<pauses>

"Huh?"

"No, really. Here, I printed out their directions from the e-mail they sent us when I asked about microwave popcorn {or whatever product}"

<reads>

<Thud.... thud... thud...> <--- that would be the allergist pounding his head on the desk in the exam room.

QuoteOur contributor Susan Weissman told me that her friend Rose Ann Miller recently called Heinz customer service to ask whether mustard, to which her child is allergic, is one of the ingredients included under the entries "natural flavorings" and "spice" on the label.

Quotewe are not able to disclose whether it is in the recipe and, therefore, suggest that you avoid using this product

QuoteAt this point, all companies that make these convenient and fun kids yogurts have called back with the news that yes, all do have strawberry in the "natural flavors", even the unhealthy looking bright blue cotton candy flavored ones. Some companies will not share what is in their "natural flavors" unless a signed letter from your allergist goes along with your request, or you can get your allergist to call them for you.

QuoteMy poor little girl was holding the bathroom trash can, and she was asking me, "Mommy, Mommy, why is my tummy hurting?

QuoteI wrote to the company to see if their "flavoring and spices" did, indeed, contain mustard, or maybe even sesame.

QuoteI would like to take a moment to explain a bit about how I reached the point where I email/call every single company to vet each new product that my daughter eats. I no longer go by what I see on the label, alone.