Em pitched a rip-roaring fit because I wouldn't let her have peanuts in Granny's room.  I need to find a non tree nut cross contaminated brand (I posted).  Tears, red face, MAD.  Maybe I am taking a gamble on keeping peanuts in the diet but I do let her continue to have peanut butter and some other peanutty items. 

In the midst of the hazelnut debacle she did tell Grandpa that the shot in her leg hurt way less than in her toe but made her feel better immediately (and thankfully DS1 and DS2 were in there to hear that).  Not that I want to epi her but maybe having it later than sooner was better for her (and I mean later age wise, not delaying epi though I had little choice the night of the ER visit because I didn't have jrs on hand).  And it probably helped that she had a shot in her toe a few months prior so she could compare which hurt less.  Things to be grateful for??

Yup.  We no longer care if DD ever outgrows anything else.  Hell, we'll happily settle for halting the allergic march at this stage, tyvm.   Please, please, please let's just not see what is behind ANY of the doors.  To heck with any deal-making, I'll keep what we have.

Kind of wishing that we'd had the foresight to think that way ahead of that damned egg challenge.    

  I have no calming words but I sure understand what you mean.

I'm to the point that I, one not really known for prayer, have caught myself more than once in earnest prayer that my youngest develops some sort of threshold for milk. Like 1 mL, please.  At this point I don't care if he can ever have barley or wheat.

I doubt it, with Nutella.  Pretty much as low as risk gets for XC.

(IMO)

I say coconut is still okay because she is consuming with no issues, peanut as well. 

But yes, hazelnuts (Nutella) and macadamia nuts.

I have been putting off the allergist visit because I wasn't ready to face facts.  Guess I have to now (at least stress of Christmas is almost over).

And while I don't like wishing allergies on my children, for the love of Pete and all that is holy, my brain can only handle so much.  No wheat, rye, barley and egg for DS1, no peanuts for DS2, no tree nuts for Em, no bananas or eggplant for me (along with my drug allergens).  My brain hurts...

http://www.ncbi.nlm.nih.gov/m/pubmed/12209105/

Sticking this here.

With Nutella, I thinkbit's just hazelnuts in that plant. I could be wrong.

Coconut is a drupe and such a different animal. I don't know but could see how hazelnuts and macadamias could be in the same food family.

They're not.

Maybe the hazelnuts were cross contaminated with the other tree nut she is allergic to. Same reason they tell us to avoid all tree nuts because of peanut c.c.

And now we can add hazelnuts to Em's list.  I guess we can just call all tree nuts (though she tolerates coconut still) to the list.  Or we will until I can get to the allergist.  She used to be a huge fan of Nutella but yesterday was hives on chin, scratching of the tongue and ears.  Yes, two or more systems and should have epi'd.  I had four adults telling me it was overkill.  Lots of eagle eye watching (and will have to talk to my MIL about her comments because I have been doing this for nearly 10 years and I wasn't putting words in her mouth or thoughts in her head). 

I have been trying to figure out what has changed in the last year after thinking we hit "safe zone".  But as I read more about gut bacteria it makes me wonder.  In July she was on high powered antibiotics after the splinter under the toe nail debacle (her foot started changing color which made me take her straight the ER).  And then sulfa based drugs for the UTI for 10 days in October.

Regardless, it stinks.

So sorry to hear you and and your daughter had to go through this.  Thankfully, Em has an awesome Mum and family who will support her.  She has confidence in you and looks up to you and her siblings with allergies and knows she will be okay because of that.  We're here for you, YKW.  You are an awesome Mum no matter what you may think now.  Take care of yourself, don't beat yourself up too much, and borrow some hope and happiness from Em. 

sorry to hear this.

So sorry YKW.   

    I find that those moments of angst and grief for normative lifestyle tend to come in waves.  I've been in a bit of a funk there lately, myself.

Quote from: YouKnowWho on November 13, 2014, 12:55:36 PM
I think mainly I am mourning the loss of what her life was vs what her life will be, kwim?

I know exactly what you mean. I often mourn how different DD's life is, and I find myself doing it quite a bit lately as she has entered her teens. I'll even cop to having envy of people whose children do not have food allergies. Oh to be able to give your child anything to eat and not even think about it.

It's perfectly normal to have this swirl of emotions after what you went through last night. That's why we're here to lend an ear and send good thoughts.

I think mainly I am mourning the loss of what her life was vs what her life will be, kwim?

She told me she is happy that I have to read labels for her now (and FWIW - I read labels for her because food allergies also made me look into cleaning up how we eat and some of the stuff on labels is disturbing). 

But it's just macadamia nuts - it's not that big of a deal.  But it is.

Can you tell my brain is arguing with itself?