Quote from: ninjaroll on July 12, 2015, 04:39:56 PM
You are a Jedi master.

No, not in that situation.  That was one big mess.


Many lessons learned though.


------------------------




A different view ...


"Medical Child Abuse Is a Problem, Not a Panic"
http://www.chadhayesmd.com/medical-child-abuse-is-a-problem-not-a-panic/

QuoteMs. Eichner states that she writes from experience. Well, I write from experience, too–experiences that I wish I'd never had. And while the highly-sensitive nature of these cases prevents me from discussing them, I will assure you that they are both more common and more tragic than you would like to believe.

You are a Jedi master.

There's the Tennessee public school case, too.  When the validity of the protected activity itself is challenged that's a nice trip up a certain creek without a paddle.  Basically, disability and disease suck.  They suck more when the establishment engages in sexism*, because disability and disease alone aren't difficult enough.

*One can use the genderless term parent but what is really meant is hysterical Munchausen mom.  Why sugar coat it.

We did go for a second opinion, in a different hospital network.  I am very grateful that they put the focus back on dd & took care of her.

It's not a perfect solution but if you're getting a hint of any of this it may be time to connect with the hospital's ADA coordinator, further the U.S. Department of Health and Human Services' Office of Civil Rights.  Not every illness is a disability, but where there is disability and violation of civil rights don't hesitate to bring them in.  I've changed a conversation really fast by suggesting it's time to bring in the hospital's ADA coordinator.

Yes, it is.

I feel very lucky because I have a "reason" to have my background medical knowledge, and it's credentialed with a terminal degree.  Most parents are not so fortunate.

"The New Child Abuse Panic"
http://www.nytimes.com/2015/07/12/opinion/sunday/the-new-child-abuse-panic.html?_r=0

Quoteabout two-thirds involved a demanding mother who got on a doctor's nerves; the remainder involved a parent who was too anxious in dealing with doctors who couldn't give adequate answers

QuoteThe task force identified these warning signs of medical child abuse: a "highly attentive parent" who is "unusually reluctant to leave his/her child's side"; a parent who "demands second and third opinions"; a parent who "is not relieved or reassured when presented with negative test results and resists having the child discharged from the hospital"; and a parent who has "unusually detailed medical knowledge." These warning signs accurately describe many, if not most, loving parents of medically fragile children.

This is a disturbing topic.



During "the clash" I had with the doc, many of those "warning signs" could have applied to me.
It's a scary thing to have a doc turn against you.