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Topic summary

Posted by eragon
 - May 12, 2016, 03:45:09 PM
Does mylan supply USA with autoinjectors for everyone? All doses? longer needle length for woman?
If so, dont think it really matters who pays SJP.

But morally as a parent, I have only used my our family story to promote the allergy charities and never got paid cash for it. I saw it as a chance to improve my children's future life in society as an allergic person, and keep the charity work going. 

Posted by maeve
 - May 09, 2016, 01:06:58 PM
Mylan previously paid Julie Bowen from Modern Family to raise awareness; she also has a child with nut allergies. I think they've also employed the Super Nanny.

McC, it was Trace Adkins whose daughter has multiple food allergies. He donated proceeds from a single to FARE (when it was FAAN). I bought the single just to support the cause.
Posted by lakeswimr
 - May 06, 2016, 04:04:41 PM
I think she has a lot of fans and maybe some will be moved and be more understanding of the seriousness of FAs.  I think it is a good thing. 
Posted by Macabre
 - May 06, 2016, 12:54:47 PM
So it's about five minutes in in case no one wants to watch the entire thing.

When did Whoopi Goldberg become a television host? How cool is that. She and Sarah Jessica Parker are talking about FAs and no one is making inappropriate jokes.

What a great awareness opportunity. That is a popular show, right? And this segment was wholly sympathetic to FAs.

I'm totally fine if she's getting paid by Mylan to be a spokesperson. It's actually brilliant. There was a country star who had a kid with FAs--and that doesn't do much for me at all. But I LOVED SJP in Equal Justice and Sex in the City. So many moms like her--even non FA moms. If she can make others sympathetic to the plight of families with FAs, it's a total win for us.


There are moms who have turned managing FAs into a business. I'm totally good with that. That's how our community has more safe food options.
Posted by PurpleCat
 - May 06, 2016, 08:27:59 AM
I liked the segment.  I like her message, "being ready".  I don't feel she stepped over any line. 
Posted by GoingNuts
 - May 06, 2016, 07:21:42 AM
I don't see a problem with it.  For one thing, here in the US, it's not like we have much choice of injectors right now, LOL. (Gallows humor.)

People use their celebrity for all sorts of reasons - to increase awareness of various cancers, diabetes, etc.  I'm pleased to see someone with a high profile talking about FA's.
Posted by eragon
 - May 06, 2016, 03:42:37 AM
paid by mylan  to promote mylan, so not ethical but apart from getting paid to use her sons story which is something I have never done. Our tv and documentary stuff was all to raise awareness of allergy and promote AllergyUK or Anaphlaxis Campaign. Or politically with the NASG with the house of commons.

using a famous person who gets paid by an auto injector company means she promotes one type of injector, when patients may find another more suitable for them. Its a thin line, and although not strictly ethical, it does for me raise moral questions esp as patients are viewed more as consumers rather than pure medical requirements.
Posted by spacecanada
 - May 05, 2016, 07:17:38 PM
The video has no mention of anything being unethical? Her story is probably fairly common for a first reaction and not knowing what to do.
Posted by eragon
 - May 05, 2016, 04:08:32 PM