There was a study...I know I completed it for our family:

http://www.faiusa.org/page.aspx?pid=668

Not sure when the results are coming out though. Seems like it shouldn't take half a year to tally things!

Please NO QUOTE:

THIS (!!!) was the allergy practice where we FIRST took our son (after the biphasic ana reax on Tgiving Day) . . . once upon a time.

Quote from: CMdeux on May 30, 2012, 01:44:03 PM
Right... but... this is more about diagnostic significance of the fact that you get hives on your forehead when you ate something.  KWIM?

That's potentially an indicator for an Epipen script in a way that oral itching might NOT be. ("localized" as opposed to generalized, so could be OAS, right?)

Right or for those who are contact reactive, the hives would be generally confined to the part of the body exposed to the allergen.  In the case of my DD, that usually meant her arms.  If we spotted hives on her tummy when we lifted her shirt, we knew the reaction was systemic.  That's actually one of the things we tell school staff to look for.  We tell them to look at her tummy and if she has hives there, it's not a contact reaction.

Quote from: Ra3chel on May 31, 2012, 12:31:07 PM
Tangential to this: I would really like to see someone do a study on the affect of financial hardship / costs (genuine or perceived) on adherence to allergy action plans among FA adults and the parents of FA kids.

Although I'm new to FAs and to these boards, and so don't have any experience to base this on, I imagine you would find it to be a profound influence on choices made. I have just been diagnosed with LTFA but have several times found myself holding back on using the Epi when I know I should have. I was thinking about why I held back. Although money didn't play a role at the time of the reactions, I mentally calculated the $75 ER copay multiplied by the times I should have Epi'd and didn't (and luckily all turned out OK), and I definitely blanched at the out-of-pocket costs I would have incurred. (Going to have to max out our FSA next year, I 'm afraid!) I can imagine that for many people with multiple kids with multiple FAs, the money can be a real difficulty. You would never want to think you'd compromise your child's health because of money concerns, but in real-life situations, I am sure it's sometimes impossible not to factor that in.

Swaygirl

Tangential to this: I would really like to see someone do a study on the affect of financial hardship / costs (genuine or perceived) on adherence to allergy action plans among FA adults and the parents of FA kids.

OK, now I get what you are saying.  I'm sure a doctor would agree that my own personal reaction history is more important for myself, but medical instructions tend to be given "in general".  And, the fact that my reactions originally were my forehead, and over time developed nto anaphylaxis, might be pertinent as well.  You know what I mean?  When my cup runneth over it did become anaphylactic.  (I'm so crazy I find that funny.)

Right... but... this is more about diagnostic significance of the fact that you get hives on your forehead when you ate something.  KWIM?

That's potentially an indicator for an Epipen script in a way that oral itching might NOT be. ("localized" as opposed to generalized, so could be OAS, right?)

I can relate that to my son...but not to me.

He got bit on the ankle and his leg swelled to the hip.  If swelling was, say, on his arm when bit on the ankle, that would mean use epi.

But, when I eat the food goes....to my stomach.  First hive tend to appear on my forehead.  Food has not touched my forehead.  Doubt I'm hooked up so weird that's where it goes when I swallow.  And for hives on my forehead I would NOT epi.

Now, hives on my back....I'm a little more inclined to make sure the epi is close at hand.  For me, if I've eaten traces of sesame, hives on my back usually won't get worse...but more then a trace, and hives on my back are gonna get worse.  Much worse.  (That's just me.  I don't think it means the same for other people.)

I'mm guessing that in the medical sense, that term mean "systemic" or symptoms at a site removed from the site of exposure.  E.g.-- not 'contact' reactivity.

This is a different beastie than symptoms which occur at the site of exposure, and technically, ANY symptoms like that are "anaphylactic" in nature, though they may be mild.  "Systemic" or "Generalized" is a term that conveys that they are different without creating any real confusion related to what constitutes life-threatening anaphylaxis symptoms.   KWIM?

Quote. Injectable epinephrine is now recommended for any generalized allergic symptoms.

Define "generalized" allergic symptoms.

Me too!

http://www.carolinaasthma.com/PDFs/PEANUTPAPER.pdf

Man, this one covers it all. Wish I had read it 10 years ago!