Lakeswimr is referring to alpha-Gal IgE-mediated sensitization, brought on by a tick bite.  It makes the individual suddenly allergic to all mammalian meat.

There are relatively few specialists that are experts in alpha-Gal allergy-- mostly in the southeastern US, because of the apparent spread of the syndrome/allergy/phenomena.

We have a few threads about alpha-Gal allergy.

If you are eating something that is making your throat swell then you have IgE mediated food allergies (or one allergy, more likely) and it is essential for you to go to a good allergist who knows food allergies well (as not all allergists know food allergies, some only specialize in asthma and environmental allergies) and figure out which of the foods you have been eating is causing this.  You also should get epi pens and use them when your throat swells.  Epinepherine is the only drug that can stop a reaction that is going to progress from progressing and once throat swelling starts there is no way to tell if it will stop on its own.  Most anaphylaxis self-resolves but not all does and that is why epinepehrine is so very important.

You should also have a written emergency plan that tells you went to use the epinepherine.  http://www.foodallergy.org/document.doc?id=125

I understand you like this new way of eating and it could be very true that this is a much healthier way to eat than the way you used to eat and the way many others eat.  However, if one of the things you are eating is an allergen then you must avoid that food and eat something else in its place. 

In the past few years in addition to ordinary IgE mediated food allergies, people who have had a certain type of tick bite have sometimes become anaphylactic to cow's beef and maybe some other things--perhaps to pork.  These people have anaphylaxis from eating beef but it can be a bit different than ordinary IgE mediated food allergies because it can have a delayed start to the reaction.  Ordinary IgE mediated food allergy reactions start within 2 hours of the time the person ingests the food and almost always within minutes to up to 30 or 45 min of ingestion. 

I would look at what you are eating now and my biggest suspects for the allergen would be things you added new to your diet or had not eaten for a while before you changed your diet. 

Good luck figuring this out.

Proxy connections are one of the things I look for when evaluating whether a suspect poster is legit.  FWIW, his IP is a static IP with no proxy detected and the same IP for all posts.  However, the disparity between what was said, syntax, etc. and supposed location was in and of itself a red flag.

Quote from: rebekahc on July 16, 2013, 03:08:34 PM
Your IP says you're in Sweden.  Why did you call 911 - isn't the emergency number 112?

Proxy IPs. Mine will show up as Netherlands sometime. Depends if I bother to use it. OP is American anyhow as he reflexively uses American z instead of English s.

Quote from: Adam on July 17, 2013, 03:54:42 AM

Panic attacks in case you didn't know are emotional problems, they don't swell your throat, didn't you know that, "moderator"?

Panic attacks in case you didn't know do a wonderful job of mimicking anaphylaxis.  I've had both, and been in an ER for both.

 

Some additional help for those wondering whether or not they need the help of a physician to tease apart their situation:

Not to scare you-- but to make you realize what is actually at stake--

In Memory:  Remembering those who've had fatal food reactions

Why managing food anaphylaxis yourself is a bad idea--

Why antihistamines won't stop anaphylaxis

How epinephrine works and why it's the only thing that DOES work to halt anaphylaxis--

How epinephrine works to stop Anaphylaxis

(That should also explain to anyone reasonably well-educated in biology why epinephrine may be a really BAD idea if you are mistaking a cardiac condition or panic attacks for anaphylaxis, and it's yet another very good reason to consult a board-certified allergist with training in food allergy.)

The Anaphylaxis Grading Chart, layman's terminology

Anaphylaxis Grading Chart,

which is Table 2 in the original peer-reviewed journal article;

Pediatrics Vol. 111 No. Supplement 3 June 1, 2003
pp. 1601 -1608


(Hopefully this will prove to be "scientific" enough for our troll, above.   If not, at least it is educational to other readers, which is probably more important.  )

Let me reiterate:

Managing in-progress, suspected food anaphylaxis is not a do-it-yourself project.  Do not pass go, do not collect $200, DO NOT DERIVE DRIVE YOURSELF TO EMERGENCY MEDICAL ASSISTANCE.  <--- take a long, hard look at that anaphylaxis grading chart.  Left in an upright position, you are at risk of a loss of consciousness if you try.  Please, please, please-- as the voice of horrifying first-hand experience-- you can go from grade 1 and 2 symptoms on that chart... to grade V within SECONDS, and with no warning whatsoever. 

[spoiler]I can hardly wait for our troll to explain how he drives himself to the hospital completely safely, from a rescue position within his specially designed automobile. [/spoiler]

ETA:  damn you, autocorrect.  Funny.  But poorly timed.  LOL.

Quote from: CMdeux on July 17, 2013, 12:20:05 PM

Quote
Have you heard of science?

For the regular members of our community--


[spoiler]  [/spoiler]

LOL

Quote
Have you heard of science?

For the regular members of our community--


[spoiler]  [/spoiler]

This is clearly a troll (as if it wasn't clear by now), and a fairly ignorant one.

It's a good reminder, though--

definitely use healthy doses of skepticism with any friend, family member, manufacturer CSR or restaurant staffer-- they may initially make many of the right noises to you to indicate a good grasp on your needs.  When your gut tells you that it's merely a smokescreen, ask to see what is behind it before you trust that person with your life.   


It's also a poignant reminder that the average layperson definitely considers their SIL's new 'gluten-free for increased energy' diet and a friend's "only-organic produce" rule to be in perfect parity with your need to avoid all contact with shellfish or tree nuts.  No more, no less.  They will treat you accordingly.  This means, just as in our troll's example, that they will quite readily think that they are "weighing" dietary preferences with food allergy needs-- and "compromising" on them both.

Be very very careful trusting others.  Some people are ignorant and can be educated, and some people cannot ever be educated enough for you to trust them with anything related to your FA.  Sadly, some of the latter group may be beloved people-- who love you in return.  It's not related to your importance to them, unfortunately.




helpful tip:  making your font larger or bold doesn't add to you credibility much when you're not actually having a conversation.    If you don't want a conversation, then this probably isn't the right venue for you.  That would be called a "blog" instead, and everyone with something to SAY (as opposed to questions and a desire to listen) is free to have one of those which is all their own.   

So you're going to attack the two Admins of this board while still managing to dodge actually answering questions that might help us delve into your allergic reactions?  Wow. 

The people who have responded to you are very smart and very well-educated on allergies.  So let me repeat for them--if you have accurately portrayed your symptoms, get yourself to an allergist to find out exactly what you are allergic to.  Your life depends on it. Period. 

Yes, it is possible that it is not an allergic reaction, but something else, such as panic attacks going on.  And while panic attacks are emotional/psychological in origin, the symptoms are very much physical, and an indeed include swelling or constriction of the airways.

And if you are really not experiencing such symptoms, we have dealt with attention-getters here before. 

This is so ridiculous my throat is swelling up again.

JK.

I know enough about IGE, IGG, cascades, that you have no idea about. No one takes this more seriously than me.

I don't "end up" in an ER, I TAKE MYSELF in that direction when I get worried. Kay?

No ones gonna ask you about your opinion on anything because you are negative. Oops, off topic.

Oh, and stop apologizing, no one cares about you in this discussion. 

Panic attacks in case you didn't know are emotional problems, they don't swell your throat, didn't you know that, "moderator"?

So far, you haven't demonstrated anything to impress me intellectually.

Stop it wiith this whole; me offering medical advice-nonsene, I'm stating my effing opinion, if you don't like it do something else. Lol! 


What drives me the most crazy is the fact that you're calling DAVE ASPREY's dietary advisements "philosophic"!!

Have you heard of science?

This went off-topic because somebody had a lot of aggressions to take out on someone who has a positive outlook on life. I will try and email someone responsible so they can see for themselves how questions are being handled. Oh, and no apologies. Lol!   

Go ahead delete it all, I don't care.   

Adam, your post demonstrates profoundly, DANGEROUSLY ignorant beliefs regarding  IgE-mediated food allergy and anaphylaxis.  I do not want ANYONE to think that this is a reasonable response to the symptoms of anaphylaxis.  Please educate yourself so that you have some idea what kind of danger you are toying with.  Much of the "information" on the web related to food allergy is not about food allergy at all, and even less of it is what I'd call "good" advice. 

Quote from: Adam on July 16, 2013, 03:36:46 PM
"and know that not everything you read on the internet is even remotely based on science or anything related to reality, for that matter" Wow. Talk about being ignorant.

Anyway, yes, I am in Sweden, but allergies are universal. So who cares?

My regular diet, just like most peoples regular diet is inflammatory and useless. Understand that there are better ways of eating that you might not yet want to learn about.

After the first swelling I eliminated the grain/grass-fed butter, and now I have to eliminate everything because this happens several time per day, I have taken myself to the ER a dozen times, and fortunately it has never been anything serious but frightening nonetheless.

The diet you attack consists of 50% healthy fats, 25% vegetables and the rest animal protein.

I wanted to know if there is a common denominator because even if I "switch" to my regular diet I will feel sick from the starches and nutrition-low food, just like everybody does, I will have the same symptoms.

Thats where the breathing techniques came in handy because there is a connection between stress and allergic reactions.

Peace

I'm not one bit surprised that you're winding up in the ER multiple times given how you've chosen to manage your situation.

Eventually, you can expect to die from this kind of management.

  That's not me being mean, by the way-- that's simply the fact that reality doesn't care how calm you feel while your oxygen saturation drops to nothing and your heart stops from a catastrophic crash in your blood pressure.

  Relaxation and deep breathing is not life-saving to someone experiencing anaphylaxis.



I'm sorry, I'm not usually so very blunt:

  Either you actually HAVE a medical problem which is IgE-mediated

or--

you DO NOT have that as a problem, in which case, you're offering dangerous, ignorant advice to people (here) who can actually DIE from what they put in their mouths.  You would be better off finding out what IS going on.

  I don't really care whether you find some particular dietary philosophy helpful or not.  That's not the point.   You didn't ask me what I thought of your diet, so I didn't say.  Would you like me to render an opinion?


Understand that there are better ways of managing a food allergy.

Then understand that pretty much EVERY other concern about food has to serve the prime directive of avoiding what you're allergic to. 

Or you're courting death.  It's fine if you believe so strongly in your dietary philosophy that the sacrifice is worth it.  But you asked for insights from a food allergy support group, and a fairly well-educated one that keeps current on research practices and best-practices for diagnosis and treatment.

There IS no way to eat a food allergen safely as part of your diet.  

   Anything else is not really fact-based.  Rotation diets, 'clearing' allergies with energy, 'reducing inflammatory responses,' or supplementation with vitamins,  avoidance of foods which are not allergens, are all, in that context-- complete and total garbage.  Those things are scientifically invalid from start to finish as a means of managing food allergy.



You've stated that NO MEDICAL PROFESSIONAL HAS FOUND ANYTHING WRONG WITH YOU.  Is this correct?  If so, be aware that it is possible that your symptoms are not related to what you are eating in any way, but might be panic attacks instead.

So you came here to talk about your pesudo-Paleo diet and a better way of eating?  That's fine, but it's not appropriate for ON TOPIC areas of our forum.  If you honestly have questions about possible food reactions, we'd be happy to help, but with you calling us ignorant, and the general attitude portrayed in your response, I doubt our members will bother.

Here's some questions to get you on the right track for ON topic discussion:
1.  What exactly have you eaten right before your reactions?
2.  What specific symptoms have you had when reacting?
3.  Who gave you a peak-flow meter and EpiPens?  What was your diagnosis?  How was that diagnosis made?
4.  Is there any possibility you may recently have been bitten by a tick?
5.  Are there any other commonalities between your reactions other than food - environment, exercise, etc.?

"and know that not everything you read on the internet is even remotely based on science or anything related to reality, for that matter" Wow. Talk about being ignorant.

Anyway, yes, I am in Sweden, but allergies are universal. So who cares?

My regular diet, just like most peoples regular diet is inflammatory and useless. Understand that there are better ways of eating that you might not yet want to learn about.

After the first swelling I eliminated the grain/grass-fed butter, and now I have to eliminate everything because this happens several time per day, I have taken myself to the ER a dozen times, and fortunately it has never been anything serious but frightening nonetheless.

The diet you attack consists of 50% healthy fats, 25% vegetables and the rest animal protein.

I wanted to know if there is a common denominator because even if I "switch" to my regular diet I will feel sick from the starches and nutrition-low food, just like everybody does, I will have the same symptoms.

Thats where the breathing techniques came in handy because there is a connection between stress and allergic reactions.

Peace