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Discussion Boards => Main Discussion Board => Topic started by: DysonsMom on January 13, 2014, 08:40:27 PM

Title: Epi questions from newbie
Post by: DysonsMom on January 13, 2014, 08:40:27 PM
Well, I did it. I begged and borrowed and came just short of stealing, but I got an epipen for my 4 year old. Between a coupon, calling around, and some sort of mysterious finagling by a sympathetic pharmacist, I got the price down to $234. So, my wallet is significantly lighter, but I will sleep easier tonight.  :)
Anyway, about the two pens in the prescription: Do I need to separate them and keep one at home or am I supposed to keep them together?
I picked up a little camouflage bag and put an action plan, benedryl, and the epipens in it.  I am assuming that I will need to get some sort of cooler to carry it in the summer? I live in Florida and we spend a lot of time outdoors. That could be a bit of an issue in the summer!
Thanks for all the help, guys. It has been such a relief to have you all to turn to! :grouphug:
Title: Re: Epi questions from newbie
Post by: yelloww on January 13, 2014, 09:23:00 PM
Hi!  :bye:

I'm glad you have the pens finally!

We always carry two in case one misfires.

They can travel for some time outside of the temp range on the label.hey may be just fine in you camp bag.

I put ours in a cooler bag when it's really hot out, like over 100 degrees and we are at the beach.... but not with ice or anything cold. Simply as a way to help them maintain their current temp. Just by themselves in the bag.

Otherwise they are just in my bag.

A decade ago I called Dey to find out what there definition was of "excursions" for the Epi's. They out me through to one of the scientists. I wish I recalled how long they could be out of their temp range, but I don't, sorry! You can call and ask. If they can't answer it with a specific duration, have them transfer you.
Title: Re: Epi questions from newbie
Post by: CMdeux on January 13, 2014, 09:28:37 PM
Good job, Mama!! 

I'll reiterate what yellow states above-- just remember that the pens have to be where YOU are.  If you're comfortable, so are they.  If YOU wouldn't like being left where the epipens are, then neither do they.   :thumbsup:
Title: Re: Epi questions from newbie
Post by: DysonsMom on January 13, 2014, 10:14:57 PM
Thanks! I have them in a bag with my keys, so I don't accidentally forget them! ;D
Title: Re: Epi questions from newbie
Post by: Macabre on January 13, 2014, 11:54:32 PM
It is utterly sinful that Mylan's pricing and you insurance are such that you have to pay that much.

I am so glad you were able to spring for them. But what about people who can't pull the money together?

I'm thinking insurance should be required to cover this. Having them--and frankly more than two--is a matter of life and death.

It shouldn't be this hard. :-/
Title: Re: Epi questions from newbie
Post by: CMdeux on January 14, 2014, 12:28:27 AM
No, it should not.  There really ought to be some way that people who are caught in insurance coverage gaps can get emergency assistance with this particular expense.  It's like a heart medication or insulin, for heaven's sakes. 

(Of course, I realize that people have to struggle with those as well.  But it's wrong.)

Title: Re: Epi questions from newbie
Post by: twinturbo on January 14, 2014, 12:35:04 AM
More on the functional than political side I wonder how to get epinephrine through the ACA insurance exchange? I don't want to argue about ACA itself just get to the bottom of how to in case someone else is w/o insurance.
Title: Re: Epi questions from newbie
Post by: eragon on January 14, 2014, 05:06:20 AM
paying that much is horrific. but then I have never paid for any of my childrens medications, thank god for NHS!
once my son is 18 we will have to start paying for his prescriptions but thats only about £7 each.

i thought epi pens only cost about £60 each how do they justify this cost?
Title: Re: Epi questions from newbie
Post by: maeve on January 14, 2014, 08:41:59 AM
Quote from: eragon on January 14, 2014, 05:06:20 AM
paying that much is horrific. but then I have never paid for any of my childrens medications, thank god for NHS!
once my son is 18 we will have to start paying for his prescriptions but thats only about £7 each.

i thought epi pens only cost about £60 each how do they justify this cost?

eragon,
Medications generally cost more in the U.S. than other countries for a number of reasons (including a longer length that patent protections remain in place, Medicare/Medicaid are forbidden by law from negotiating better prices from pharmaceutical companies, etc.).
Title: Re: Epi questions from newbie
Post by: LinksEtc on January 14, 2014, 08:52:32 AM
Quote from: DysonsMom on January 13, 2014, 08:40:27 PM
Anyway, about the two pens in the prescription: Do I need to separate them and keep one at home or am I supposed to keep them together?
I picked up a little camouflage bag and put an action plan, benedryl, and the epipens in it.  I am assuming that I will need to get some sort of cooler to carry it in the summer? I live in Florida and we spend a lot of time outdoors. That could be a bit of an issue in the summer!
Thanks for all the help, guys. It has been such a relief to have you all to turn to! :grouphug:

A couple more points ...

Another reason to always carry 2 EpiPens is that sometimes more than one dose is needed for a severe allergic reaction.  For example, look at the action plan again -
http://www.foodallergy.org/document.doc?id=234 (http://www.foodallergy.org/document.doc?id=234)
QuoteIf symptoms do not improve, or symptoms return, more doses of epinephrine can be given about 5 minutes or more after the last dose.

One of our allergists suggested always having 2 with dd & having 2 at home in a known place.  This way, there was less of a chance of forgetting them.  So when your insurance does kick in and you see the allergist for the first time, ask what the doc recommends.  Some of us here even switch things around so 2 EpiPens from different lots are kept together in case there is a problem with one lot.

As far as carrying epinephrine in the heat, you may find this thread helpful:
How do you carry your epi pens when out and about and it is 100*? (http://foodallergysupport.olicentral.com/index.php/topic,5703.0.html)

Title: Re: Epi questions from newbie
Post by: DysonsMom on January 17, 2014, 08:18:02 PM
Thank you! I will be so glad when insurance kicks in at the beginning of February! He has an appointment with an allergist Monday, February 3rd.
Title: Re: Epi questions from newbie
Post by: CMdeux on January 17, 2014, 09:48:21 PM
I am really glad.   :yes:
Title: Re: Epi questions from newbie
Post by: GoingNuts on January 18, 2014, 06:46:22 AM
Quote from: twinturbo on January 14, 2014, 12:35:04 AM
More on the functional than political side I wonder how to get epinephrine through the ACA insurance exchange? I don't want to argue about ACA itself just get to the bottom of how to in case someone else is w/o insurance.
It's just like with any plan, you have to check each plan's formulary to see which of your meds are covered.

The challenge is getting a current formulary from each plan.  But that's another post entirely.

Glad you got those epipens, and that your insurance will kick in soon!
Title: Re: Epi questions from newbie
Post by: twinturbo on January 18, 2014, 08:54:30 AM
OP is in a situation without health insurance coverage of any sort. There is no plan, no formulary.
Title: Re: Epi questions from newbie
Post by: Former Member on January 19, 2014, 09:15:37 PM
Virtually every plan posts their formulary for their ACA compliant plans (also known as "Obamacare" plans) on their website.  It may take a bit of looking but it is virtually always there.  You can get free epipens at a certain website.  I tried to post the link, but got a message saying guests are not allowed to post external links.  The link I wanted to post provides three 2 packs (so six epipens) for free.  You do need an rx from your doctor and you don`t have to get three two packs.  You can get less than that if you don`t need that many.
Title: Re: Epi questions from newbie
Post by: DysonsMom on January 20, 2014, 08:47:23 AM
Can you tell me what to Google? We are going on a cruise in March, and I would really like to take more than 2.
Title: Re: Epi questions from newbie
Post by: CMdeux on January 20, 2014, 09:47:36 AM
There are links for up to $100 off of each purchase (from Mylan):

https://activatemysavings.com/epipen/ (https://activatemysavings.com/epipen/)

But other than Mylan's own patient assistance program (which takes quite a while and has a lot of documentation that our OP won't have-- that is, proof of income less than 200% of federal poverty standards, etc.) I am unaware of anything that provides them completely FREE.


Btw-- I have yet to run across anything more current than:

http://www.needymeds.org/papforms/deyepi0060.pdf (http://www.needymeds.org/papforms/deyepi0060.pdf)

and

http://www.needymeds.org/drug_list.taf?_function=name&name=EpiPen%202-Pak&gname=epinephrine (http://www.needymeds.org/drug_list.taf?_function=name&name=EpiPen%202-Pak&gname=epinephrine)

for low-income assistance.  I am posting them both in case they are helpful.


Title: Re: Epi questions from newbie
Post by: yelloww on January 20, 2014, 09:57:55 AM
Are Auvi Q's cheaper with the coupons? Something else to consider as an option.
Title: Re: Epi questions from newbie
Post by: twinturbo on January 20, 2014, 11:03:06 AM
Only with insurance, which is exact nature of the problem OP is in. She's caught in an uninsured gap. I feel like I should query someone from ACA and normally I'm quite stalwart about penetrating government bureaucracy but I don't know where to find purchase on that one that gets the sort of answer that I can point another to. No one should have to make that decision to get life threatening medication for their child.

Feelings aside, it's the how does it get done so we would have a more practical answer. Insurance and taxes I'm terrible at both.
Title: Re: Epi questions from newbie
Post by: DysonsMom on January 20, 2014, 11:24:56 AM
Ahh...gotcha. I see that the coupon does have a no copay with insurance. That actually will help. I will get another prescription from the doctor after we are insured.
Thanks everyone!
Title: Re: Epi questions from newbie
Post by: Former Member on January 21, 2014, 10:49:02 AM
The website I use gives you a coupon for free epipens, not $100 off.  I just filled a rx for 2 two packs over the weekend and paid $0.  Would the moderators consider changing it so that a guest post a link?  I would love to post it since it seems like others are wasting money.  I realize you don`t want spammers, but people are wasting a lot of money paying for something that is so easily obtained for free.  This offer is good until the end of 2014.
Title: Re: Epi questions from newbie
Post by: Former Member on January 21, 2014, 10:54:49 AM
Also, the website I use does not require you to have insurance.  The epipens are free for everyone, with insurance or without. 
Title: Re: Epi questions from newbie
Post by: twinturbo on January 21, 2014, 11:01:09 AM
Can you post it as plain text? Is it activatemysavings (https://activatemysavings.com/epipen/)? Double-checking that it's not a case of $0 co-pay.

(https://activatemysavings.com/epipen/images/copaycard-cc.png)
Title: Re: Epi questions from newbie
Post by: AdminCM on January 21, 2014, 11:25:36 AM
Would the moderators consider changing it so that a guest post a link

Unfortunately, no, sorry-- because of forum spam.

We get plenty of actual registrations already which are for that purpose-- and we have layers of "newbie" permissions to deal with it, actually.  Plenty of other sites won't even allow that much-- we do, but there's absolutely NO reason why you can't register, then unregister.
Title: Re: Epi questions from newbie
Post by: Macabre on January 21, 2014, 11:47:49 AM
Or, you know--register and stay.