New Study - Young Kids with FA's May Learn Helplessness

[TT]

Well I won't be able to tell on a granular level where we're disagreeing or agreeing but for the most part we're in a very similar demographic so I would go with implicit agreement with temporal limitations.

The expiration date on the pass has come and gone.  Once upon a time when FAB wrote the entry it was an accurate observation for both parents and medicine.  Much has changed for her, much has changed in allergy as a discipline, but unfortunately not much has come from research in terms of advancement or improvement.

Anecdotally, at brick and mortar schools while I have seen a few parents get "accommodations" for kids that test positive to alt med or conventional med by testing alone, they don't have those experiential behavior modifying effects from episodes to life threat therefore they tend to lack the behavior of constant threat assessment as a survival trait.

Empirically, research continues to hamper progress with the typical inclusion/exclusion criteria that includes in the same population subjects that test positive with no history generalized to an entire population that tends to conclude on children that are excluded due to history of severity.  We call that science based and anything that might have been valid about the children who were excluded, myth.

Then we have a medical system that will not really regulate who can practice allergy and what allergy means.  In that respect if medical professionals are muddying the waters how can parents at the receiving end be responsible for dysfunction?  How is the average person whose MD sends him or her for E95 or IgG testing supposed to understand the difference?

Yes, a few bad apples can ruin it, and maybe they did but now it's a known phenomenon.  I don't think it's something so incredibly pervasive that solid scientific practices couldn't address all the while helping the entire population.

[CMdeux]

Anecdotally, at brick and mortar schools while I have seen a few parents get "accommodations" for kids that test positive to alt med or conventional med by testing alone, they don't have those experiential behavior modifying effects from episodes to life threat therefore they tend to lack the behavior of constant threat assessment as a survival trait.

Agreed.

I'm cynical about attribution here, though-- I think that this is so not because parents/caregivers don't BEGIN that way, and maybe even TELL others to behave that way....



but because darnit, it's just so damned much ENERGY to maintain it over the long haul.   Which, from a functional standpoint, probably means that these are folks that start out with major orthorexia in their quiver, add ""food allergy"" (as opposed to food anaphylaxis-- the kind that this community lives with, I mean) when their children are 0-3yo, attempt to control every little thing around them and their kids, much to the incredible annoyance of those who can see that they are being a bit... er... uneven in application, shall we say (Oh, my kid is allergic to GMO wheat...  except in these locally produced tortillas, I mean)... and eventually, once the kids reach 5-8yo, the entire thing sort of fades because it's just too difficult to keep it going.

Maybe that is uncharitable of me.  I don't know.  It's just my impression as much as anything else, really.

[TT]

On the whole I'd need more time to think where is it now and where will it go, there's so many moving parts.  It's not like I find myself disagreeing with anything.  In some ways (for me) it's similar to Murder on the Orient Express.  Everyone had a hand in it.  But if I had to pull out one singular thought to backtrace from it would be a survival trait must not be pathologized absent of any other viable solution.  It's an abstract survival trait few understand and it is experiential, probably unlike most other life threatening disease out there because the trigger is a daily activity necessary for survival--eating.

[Macabre]

The public wants, no, needs, to see helicopter moms as the growth stunting cause of silly food allergic children who should be weeded out by Darwinism anyhow.  They need our kids to be three year old adults who can self-inject and shutter themselves in a corner keeping the disability hidden in order to not disrupt the darling 55-75 percentile who are bright, fully able, but not by standard deviations beyond the median.

In the first wave food allergies and anaphylaxis were an emerging problem dogged by ignorance that could be forgiven due to how novel allergic disease is.  While not exactly kind towards fellow man it's understandable that society would hope it was temporary therefore a matter of short term inconvenience that would go away.

That game has changed from problematic to epidemic.  I don't know about the rest of you but I don't need more correlative half-arsed psych evals by underqualified* individuals who don't bother to check themselves for bias or other flaws.  I'm also out of passes to give lazy researchers who can't bother to understand this under the lens of disability without mitigating measures, without any medical device or substance for prevention.

Word.

[TT]

I don't have answers but I would like to make an observation.

What I do to practice avoidance I can describe in five words: OPSEC and defense-in-depth.  Without me explaining it if any number of the allergy moms read a description I bet the procedures sound awfully familiar.  I'd bet real money on it.

In the back of my mind I constantly turn over the idea, "What does strategy look like?" 

It looks like two things to me at this point. (1) Equal access (2) Raising the bar for researchers, and I don't mean the ones that are truly contributing, furthering the knowledge base in a helpful manner. 

Anyhow, good night dear ladies.  The homework demons beckon.