Nutritional behaviour and attitudes to food in allergic children.

Started by eragon, December 17, 2013, 03:27:54 PM

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eragon

Its OK to have dreams:one day my kids will be legal adults & have the skills to pick up a bath towel.

twinturbo

Well there we go. Game over we're all hysterical because there's MATH proving it.

Please to be having more research monies going towards a cure, mediating medication, traction forward.

Not at you, eragon, I know you're just the messenger.

CMdeux

On the other hand, apparently having an epipen script DOESN'T produce "anxiety."

In and of itself, I mean.   ~)

So- yay?   :-/

Resistance isn't futile.  It's voltage divided by current. 


Western U.S.

LinksEtc

deleted slightly snarky post.

lakeswimr

I'm confused.  I only read the abstract but I didn't think it said anything offensive.  It said that those who deal with more FAs go to even fewer social events than those who deal with only a few.  I'm sure that's true.  It said it can make diet more limited and even monotonous.  I'm sure that's true, too.  I didn't hear anything in the abstract that sounded like the researchers felt we FA parents/FA people are overreacting.  Can someone post a quote?  I'm not seeing it.

LinksEtc

Lakeswimr,

For me, it wasn't specifically about this article which is why I deleted my post here.

I may start another thread about anxiety later.

CMdeux

Quote from: lakeswimr on December 18, 2013, 06:29:16 AM
I'm confused.  I only read the abstract but I didn't think it said anything offensive.  It said that those who deal with more FAs go to even fewer social events than those who deal with only a few.  I'm sure that's true.  It said it can make diet more limited and even monotonous.  I'm sure that's true, too.  I didn't hear anything in the abstract that sounded like the researchers felt we FA parents/FA people are overreacting.  Can someone post a quote?  I'm not seeing it.


I think it was just the fact that this seems like SUCH an unnecessary study/survey to have conducted.  I mean-- really??  This is a surprise HOW?

I will just bet that one could correlate triggering dose with those same things, too. 

:-/

My comment was probably related to a different (but related) study--
http://www.ncbi.nlm.nih.gov/pubmed/20088863

Quote
Nut allergy is known to impact on the quality of life (QoL) and anxiety of both the allergic child and their parents, but little is known about how the management of food allergy is associated with these variables. To investigate the impact of nut allergy on QoL and anxiety in mothers and children with nut allergy in order to identify management strategies that may influence these factors. Forty-one nut allergic children (age 6-16 yrs) and their mothers completed questionnaires to assess maternal and children's QoL (PedsQL, WHOQOL-BREF, FAQL-PB), anxiety (SCAS, STAI) and perceived stress scale (PSS). Children also completed a nut allergy specific QoL questionnaire. Demographic data, details of previous reactions, test results and management plans were collected using parent-report questionnaires and hospital notes. Children with nut allergy had poorer emotional (p = 0.004), social (p = 0.043), and psychological (p = 0.006) QoL compared to healthy normative data. Maternal and child QoL and anxiety were not influenced by the severity of previous reactions. Mother and child reported lower anxiety (p = 0.043 and p < 0.001 respectively) when the child was prescribed an epinephrine auto-injector. Anxiety was not associated with whether the child carried the auto-injector or whether they strictly avoided traces of nuts in foods. Prescribing auto-injectors is associated with reduced anxiety for food allergic children and their mothers, but is not associated with improved adherence with medical management or reduced risk-taking behavior.


Sorry I conflated the two things.  I clicked over to this one since it actually seemed to address some sort of real question/misconception (that carrying autoinjectors causes "undue anxiety")--- which is of course kind of ludicrous, since NOT carrying one clearly relates to about the same level of management... just without the safety net, apparently.  Yeah, who wouldn't be more "comfortable" with that situation??   :insane:
Resistance isn't futile.  It's voltage divided by current. 


Western U.S.

lakeswimr

Thanks for the replies!  The other thread had some links to studies that seemed kind of ridiculous.  This one, not so much.

I wonder what the motivation of the researchers was in the study you just posted, CM.

CMdeux

Well, there is a big part of me that HOPES that it was aimed at debunking the "epi is vastly overprescribed and it's making people freak out" cadre of docs in the UK in the early 2000's.

But it is just as possible that it was aimed at confirming it.   :misspeak:
Resistance isn't futile.  It's voltage divided by current. 


Western U.S.

maeve

Confirmation bias, eh?

Of course, I read the area you bolded CM and the first thing that popped into my head was the ad that Dey got into trouble for. Perhaps people are more lax in strict avoidance when they have an Epi because, well you know, the Epi is the silver bullet for stopping reactions. That's certainly what one could have inferred from the Dey ad and I wonder if there's an undercurrent of that in other EpiPen messaging.
"Oh, I'm such an unholy mess of a girl."

USA-Virginia
DD allergic to peanuts, tree nuts, and egg; OAS to cantaloupe and cucumber

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