Living with Food Allergies, 2013 and on

Started by ajasfolks2, February 03, 2013, 01:30:13 PM

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MaryM

I am taking DD to Mt. Sinai today to talk to the therapist that specializes in families dealing with food allergies.  I am really hoping he can help lessen her anxiety.  If you met her, you would think she is totally fine but she tells me multiple times a day that she has XXXX symptom and looks for reassurance that she is ok.  She is also not really eating her lunch at school for fear that someone might cross contaminate it.  I witnessed her eating her safe food at a party recently and I almost cried as I watched her try to keep her food completely covered and safe from the other kids (who were not messy eaters).  Its going to be a long day of driving today.  If we make good time I plan to hit Fairway Market to pick up a few things.  Its a bit of a walk from the office but its not supposed to be bitter cold today.

PurpleCat

Good luck Mary!  Hope you get some good resources and that your DD likes the therapist.

Macabre

MaryM I hope this is helpful.  Poor kiddo.  This has got to be really hard. 
DS: 🥜, 🍤

spacecanada

Best wishes, Mary.  Therapy can be incredibly helpful.  I hope your daughter will see some benefit from it.
ANA peanuts, tree nuts, wheat, potato, sorghum

GingerPye

I hope you come home today feeling like your DD is being helped .... some relief for you.   :grouphug:
DD, 25 - MA/EA/PA/env./eczema/asthma
DS, 22 - MA/EA/PA/env.
DH - adult-onset asthma
me - env. allergies, exhaustion, & mental collapse ...

MaryM

It was a very good appointment.  He gave us some things to try and talked to DD about facing her fears head on.  I liked his style.  He told us privately that her reaction is very normal and he thinks with more time she will be much better.  Totally exhausted but am making a quick meal and the. We are off to our first Middle School Info night with DS.

GoingNuts

Glad it went well Mary.  I hope she starts feeling more secure soon. :heart:
"Speak out against the madness" - David Crosby
N.E. US

Macabre

DS: 🥜, 🍤

spacecanada

That is great news Mary! It may take some time for your DD to really understand and put into play what the therapist said. It may take another visit or two, but fingers crossed she will feel more comfortable soon, so you can feel more comfortable too. Hurray for healing. <3
ANA peanuts, tree nuts, wheat, potato, sorghum


spacecanada

Printed, laminated, and posted new allergy action plans at home and work yesterday.  More paper copies in my EpiPen and Allerject carriers.  Somehow, adding a photo of me taken with Tinker Bell (who is cropped out) makes it almost exciting to see on the fridge every few hours.  Hey, whatever helps. 

Also, my husband and I had a conversation about how we should start saying 'anaphylaxis' instead of 'allergies' since there are so many people with allergies or that people assume food allergies have similar symptoms to seasonal allergies and really aren't as serious as they are. 

Tomorrow: creating signs to put up at work to visibly declare my office a nut-free and peanut-free room.  I hoped it wouldn't to come to this, but my psychologist and I agreed that it would do more good than harm considering recent events.  Anyone have any good phrasing to put inside a stop sign?  I'm thinking 'ALLERGY ALERT: Please do not bring items containing tree nuts or peanuts into this room.'
ANA peanuts, tree nuts, wheat, potato, sorghum

PurpleCat

spacecanada, is there a reason anyone but you has to eat in this particular room.  Can it become a food free room?  If others share your office, is there a common eating area for others to eat in?

Then your stop sign becomes a "NO FOOD" sign.


YouKnowWho

Not allergy alert - for the same reason you need to use the words anaphylaxsis vs allergy.

Anaphylaxsis Alert - No food allowed in this office.
DS1 - Wheat, rye, barley and egg
DS2 - peanuts
DD -  tree nuts, soy and sunflower
Me - bananas, eggplant, many drugs
Southeast USA

spacecanada

Thanks, YKW, definitely using 'anaphylaxis' on the sign.  My coworker sometimes eats in the office (it's his office too) but lately he's been eating in the classroom instead.  I would like to make it so he cannot eat in the office, actually, since he sometimes has nutty things despite knowing about my allergy. 

I cannot safely eat anywhere else (unless I scrub the tables in the classroom), so making the office food free defeats the purpose to some extent.  And if I say 'food free' then I look like a hypocrite eating my own lunch in there, no?  Our doors are half-doors, and all the offices have windows, so it's not like I can close my door and eat where nobody can see me.
ANA peanuts, tree nuts, wheat, potato, sorghum

hezzier

Drove 2 hrs to an away swim meet, we were supposed to be there 2 nights, but Sunday's events got cancelled due to the incoming blizzard.  The food bag was bigger than my bag with my clothing in it.  I had packed extra food in case we had to stay an extra night due to snow.

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