Quote from: Macabre on January 07, 2015, 02:13:19 PM
He sounds like he has such a good head on his shoulders. Glad you had that nice talk.

Her certainly does.  Very mature!

He sounds like he has such a good head on his shoulders. Glad you had that nice talk. 

Sounds like a good chat Mary and that your son is handling his disappointment well.

Thanks Mac.  He was certainly disappointed and a bit sad.  He asked to fall asleep with me so we snuggled a bit and chatted.  He told me he was sad and we talked about how nothing in his life has changed.  He still is super social, has good friends and a mom who always makes him great treats.  We talked about the fact that if he had a dairy allergy 30 years ago he would not have Daiya cheese or Divvies or the yummy vanilla soy ice cream he loves.  I also told him how much more aware restaurants are becoming and that he will have more dining out options as he gets older.  We talked a bit about the options Dr. N gave us yesterday.  He isn't sure what he wants to do, but I think he may be leaning towards the most aggressive option - retrying a smaller amount of milk because he did not like the pizza.  I told him even if he doesn't like the pizza brand they use for the challenge that if he passes he can try other kinds. I also said if he wants to wait a year and just continue with baked milk that that's fine too.  We have to sit down and discuss and then email the doctor our questions.  We are all still tired today.  DS was asleep before 8 (as was I) and he didn't wake up until 7:30.  He is usually up before 7.

I came to see how he was doing after getting home.  I'm glad he's doing so well. And I'm glad you had some wine available!   

So sorry Mary.  I am just getting to this now.  I know it feels like a kick in the gut, but it sounds like Dr. Novak views you guys as partners, and that's good.  Even bettter is DS's eagerness to be responsible for the management of his allergies.

Our kids take this stuff so much better than we do. 

A HUGE thank you to FAS. I really do not know what I would do with out you all.  It was a rough day but DS is ok and we have options.  The emotional toll is huge for me sometimes but DS is such a well adjusted kid.  He is eager to be part of the decision we will be making in the near future.  On that note, I am off to bed.  I feel like I have been run over by a truck.  I had 2 nice glasses of wine while I made DS his favorite meal and now its time to end this day.  Lets hope I am not up at 4am since I'm going to bed soooo early!

Thanks again for all the kind words and encouragement.

   I wish things could have gone differently for you and DS.

   Mary.  I know we talked earlier, but wanted to give you more hugs. 

Thanks PC.

Just got home and wanted to check....so sorry it was a fail.  It was conclusive though which is a good thing.  And it's not a new allergy, you've got this!

Such a disappointment for all of you though.

Thanks Mookie, I appreciate you stopping in here.  I know you have a lot on your plate right now.

Guess, we've been doing baked dairy for almost 2 years so we may go with pizza challenge.  Too tired and emotionally spent to think about it today. 

DS wants his favorite meal - chicken parm made with Daiya non dairy cheese.  I need to get moving.  Must pick DD up at 3:30 and get her to CCD.

  Mary.  I'm sorry it didn't go better.

I don't know what you have in mind but with those options I'd go 1, then 2, then 3.  Sequential.  Lock in the gains.

Thank you YKW.  Failed challenges are hard.  This is the 3rd one in the last 1.5 years.  BUT the reactions have all been quite mild so they have been disappointing to DS but he has not been tramatized.  When I spoke to him a little while ago after DH filled me in, I mentioned that it's great that we have learned something today.  DH and I agree that DS will be involved in the decision making process. 

I'm thrilled that Sinai offers help for FA kids.  DD needs it and I know she will get the right guidance from them.