FAHF-2

[dirtyduck]

i just got my herbal mix on monday. i took it that night and will continue to take it for three months. i thought maybe a place like this would be interested. i know i hang on every word of some blogs i hve read about using that herbal mix in clinical trials. i am not deadly allergic to peanuts, but i have a lot of food allergies/sensitivities that i need to get a handle on. i KNOW that we are not supposed to live like this!

anyway so far my throat, which is always a little sore, i dont know if it is my thyroid or tonsils,MAY seem a little less so...but i have only taken three doses of FAHF-2. one in the morning and one at night. 9 grams split a day.

i am allergic to many beans, (carob, chocolate,coffee) some fruits and lightly sensitive to many other things.

[dirtyduck]

i am hoping that my foggy brain and hormone problems, which are greatly affected by what i eat, will calm down! does anybody else have hormone problems exacerbated by what they eat???

[Macabre]

Welcome!! Yes, folks here would very much like to learn about your experience! I had looked at being in the trial a few years ago, but I lived 6-7 hours from NYC, and it just wasn't very doable. 

Thank you for doing such an incredible thing for the entire food allergy community.  I hope it helps you individually, too!

[rebekahc]

I think many here will find reading about your experience interesting.  I'm moving this thread to the Main discussion board where it will be more visible. 

[mw]

ok and thank you for moving it. i dont feel much difference yet, but its still only three doses in lol:) ill report back:)

[mw]

so..i was reading through what some ppl here were saying about FAHF-2 and i just want EVERYONE to know nothing is going ANYWHERE except in pill form down my throat...

[CMdeux]

Yeah, the newer studies are about oral administration only, I hear.     

[momtoAidenDeclan]

Good luck!  With an almost teen with a life threatening food allergy I am watching all studies...good luck and thanks!

[Mfamom]

LOL glad its going down the pipe !  Welcome and I am looking forward to following your experience

[mw]

still no huge things to report, i am on my fifth day. i read one report where the peanut allergy testing that they did, came back at 50% less, after only one week! so i am going to try eating a small piece of a date (fruit) this monday, a week from the day i started. i am not highly allergic to peanuts like so many people. but FAHF-2 works on histamine levels, not just for peanut allergies. when i eat dates, my lips get numb and tingly, my tongue feels like i licked a battery and my brain feels like a dark cloud settles in. so we will see. any questions please ask, or ideas of how to test this on my own. i do not have insurance and i have not been tested in a medical setting, so this is HIGHLY unscientific. BUT i do know when i am allergic to something!!!

[twinturbo]

Where did you get it from?

[dirtyduck]

its sunday. my throat feels ok (a 3 on a scale of 1-10). i have been eating more grains, which usually makes me more congested than i have been. like post nasal drip type thing, gross i know. i have been feeling slightly less afraid of some foods, but i think i might hold off on the date test for a few more days. not feeling that confident.

swallowing about 18 pills a day is bad. i dont know how they got the kids to do it for those FAHF-2 clinical testing groups. they are real troopers.

TwinT, a Chinese pharmacy.

[twinturbo]

Which Chinese pharmacy? Dr. Li's private practice TCM clinic in Manhattan? Or one associated with the clinical trials? Or did you go to another completely unassociated with any of them? Just wondering if it's the same manufacture or other.



Because I'm a patient of Mt. Sinai and FAHF-2 developer Dr. Xiu-min Li and I have seen her for the herbal formula outside of the clinical trials I'll provide a synopsis for any interested parties.

Here's the process:

1. Call Mt. Sinai for Dr. Li's office. You'll get Sharon Hamlin. Sharon will direct you on how to make an appointment to see Dr. Li at the Chinese medicine clinic. You'll do this all through official Mt. Sinai correspondence.

2. The clinic is Ming Qi Acupuncture on Madison Avenue. It's literally the nicest Chinese medicine clinic I've ever been in--swank. That doesn't make it better just commenting on the decoration. The ones I usually go to are more suburban or cash-only hole in the wall.

3. Prior to your appointment you'll need to get a current IgE test through local allergist and some other specifics to bring with you, they were specific in the literature they sent to me but I've forgotten since then. Dr. Li will review your data personally at the beginning of your appointment.

4. Dr. Li goes over the formula dosage and additionally the digestive tea (pills) if she prescribes them.

5. For out of state patients (which there are many, even out of country) she will require a phone in appointment to check up at the 3 month mark, a face to face at the 6 month mark with updated repeat test results if I remember correctly.

6. Dr. Li cautioned about other products claiming to be FAHF-2 or using her name without permission to endorse a similarly marketed item. At the time I was told establishing in person with Dr. Li at Ming Qi was the only way to get the regulated and endorsed version of FAHF-2 without participating in any clinical trial.



Personally, I've taken Chinese herbs at many points in my life including pregnancy, as has most of our extended family. Having that background, under LTFA circumstances with a supplement that is under clinical trial, I would be hesitant to call anything else FAHF-2 specifically if it is not part of the formula that is undergoing clinical trial or supplied by the administrators of the clinical trial. For anything else I would encourage further specification to sourcing so that others may be aware.

It's actually likely that a good local Chinese pharmacy can provide the same formula, there's one or two I would trust for myself. But for reporting purposes when most are awaiting news on a product through official channels it could be a difficult comparison without the scientific controls.

[dirtyduck]

so far is it working for you? do you write anywhere about it?

[twinturbo]

I have the medicine from Dr. Li but have yet to take it due to a blood complication.

All others here on the herbal formula do so through clinical trial. For the sake of clarity may we know if you are supplied by the clinical trial researchers either through the trial itself or through Dr. Li or associated researchers? I am an absolute advocate of TCM but disclosure of relevant diagnostics and sourcing would be helpful for those either in the trial or thinking about it. That's why many previous posters mention studies, trial, etc.

I can try to post a picture of the bottles later including the digestive tea I mentioned. Dr. Li is great, FWIW. She's of the calibre of MD + TCM you'd find in major hospitals if you're familiar with such. Like Sicherer, busy yet still very attentive.