Milk Challenge

[Ree]

I took my DS for a milk challenge today... He's been eating baked milk for 2 years.   He was SOOOO nervous and said his stomach hurt before we went in.   She gave him a teaspoon of strawberry milk and he puked within 30 seconds.. and continued to puke until all his lunch was out.    No Benadryl needed.  But the challenge was obviously called off and we don't know if he's still allergic.  She doesn't recommend we repeat RAST or SPT because his overall IGE is so high and he's dermatographic...she thinks he might have false positives.  So we need to food challenge, but I don't know how he'll ever be able to do it.

Has anyone else experienced this?  Any advice?

[GoingNuts]

No advice since we've never been through it.   

Are you thinking it was likely nerves?  Has he reacted this way in other anxiety provoking situations?

H3lls Bells, I wish there was an easier way to accomplish this. 

[Ree]

When he's nervous, he also says he feels like he's going to throw up and asks for a bucket.  He never has in those situations, but I've never given him something to eat then either.  It reminded me of when I've had a stomach virus and I try to eat something too soon.  As soon as the food hit my stomach, I puked it right back up.  That was the timing for him..   

He's never reacted that way to milk before.  My DH accidentally gave him a drinkable yogurt when he was 2 and he just sneezed like crazy. 

But it might have been a reaction...we'll never know. 

I wish there was an easier way too.   

[GoingNuts]

Awwww, poor kiddo.  I had such a nervous tummy when I was a kid too.  Actually, I still do - just not quite so bad.

I hope you can figure this out.

[Macabre]

Oh wow. I'm sorry.

[joanna5]

Oh, that sucks.  It's hard to not get answers...

[aliciapeet]

We are doing the baked milk and recently tried baked cheese only to discover our daughter gets nauseous if the cheese is not overcooked ...and she doesnt like the taste of cheese to boot--I feel like we will never accomplish baked cheese let alone get to milk challenge.  Her IGE levels are off the charts of greater than 100!

[aliciapeet]

That was clearly supposed to bea very unhappy face

[my3guys]

Sorry Ree

I wonder if after some time passed he'd be open to trying other milk type foods in a challenge...pizza? ice cream? mac and cheese? Things that have more milk protein than baked stuff, but may be more appealing?

Aliciapeet, I saw your question for me in another thread.  I raised my thread on ds' clinical trial at mt. Sinai.

[Beach Girl]

I think it may have been a real reaction.  I am 18 and have been doing baked milk for 4 1/2 years.  I do fine all the way up to pizza and eat pizza fairly often.  I even had a small serviing of lasagne twice recently and did fine.  My blood level for antibodies to milk is less than 0.35, so it is negative.   I was thinking maybe I had outgrown.  Then I had an accidental exposure to unbaked milk due to a restaurant mistake.  I had to use my epipen for the first time and call 911.  We really thought I had gotten to the point where I would not have a life threatening reaction to unbaked milk, but we were wrong.  I guess I still need the protein to be broken down.  It is very possible that your son had a real reaction even though he has been on baked milk for a long time.  The doctor has a way to do a blind challenge so that your son doesn`t know which dose is milk and which one is not.  I think it takes longer and is more complicated to do, but that should make it more clear whether he can have unbaked milk and not react.

[Mfamom]

when ds just did his peanut challenge, he was nervous.  the doctor talked to him about not failing because of nerves (he's 15, so maybe easier to get him in the right mindset).  he also talked about blind challenges when we were getting ready to start.  that might be a good option.  also, just curious why you used flavored milk? 

[Macabre]

I'm guessing the same reason some doctors use Reese's Pieces instead of plain PB--it hides the taste of something that the kid has been brought up to be suspicious of/detest.

[Ree]

Wow Beach Girl.. thanks for sharing.  You must have been very scared and shocked... so sorry to hear this.   

My DS accidentally ingested his brothers cows milk recently and had a very scratchy throat and vomiting.  He panicked when he realized he drank it so we're not sure if the vomiting was a reaction or nerves.  But, he is definitely still allergic with his throat reaction... not sure where we go from here.
 
Mfamom - They told me to bring strawberry milk for taste.  I think that was a big mistake, since it's so sweet. But, I don't think it would've changed the outcome.