Social Media

[LinksEtc]

The new exam room: Mapping patient-physician interactions online

http://blog.wcgworld.com/2014/01/the-new-exam-room-mapping-patient-physician-interactions-online

We're now seeing a migration from relatively segregated Patient-Patient and Doctor-Doctor communities to online communities where both mingle freely, sharing and learning together. One of the most fascinating places to map that circumstance is on twitter, where the study of direct conversations between doctors and patients can be visualized to help us understand how those networks function. 

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Tweeted by @trishgreenhalgh

http://www.slideshare.net/mobile/NHSIQ/scrap-the-change-programme-its-the-era-of-change-platforms

Slide 31

We believe that to mobilise the energy of these collective voices, we need a space where people come together with equal status and in a space where we remove the staff and patient dichotomy, enabling everyone to have their say.

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Tweeted by @mitsmr

"How Twitter Users Can Generate Better Ideas"
http://sloanreview.mit.edu/article/how-twitter-users-can-generate-better-ideas/?utm_source=twitter&utm_medium=social&utm_campaign=featmay15

New research suggests that employees with a diverse Twitter network — one that exposes them to people and ideas they don't already know — tend to generate better ideas.

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Tweeted by @AcademicsSay

https://mobile.twitter.com/AcademicsSay/status/642786841842814976/photo/1

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Re: Living with Food Allergies, 2013 and on


Re: Docs helping patients to surf the internet

[LinksEtc]

SM through the eyes of kids ... much different ...


I already mentioned how older dd made fun of my twitter bio mercilessly ... such joyful mocking.


Younger dd the other day as I was going through my twitter feed:
"That guy is waaay too serious" about @Aller_MD
(no offense meant by me posting this)


If I ever create a new twitter account, I will have to better take into consideration the youth perspective.   Being "cool" has never been my strength.


Now, apparently, @zdoggmd is a hit.  Younger dd loves to watch the "med school interview" one. 
Oh goodness.


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FA comments aren't so bad compared to some of these ...



Tweeted by @edyong209

The Secret Service Internet Threat Desk: their jobs is to read the comments. Pray for them. theatlantic.com/technology/arc...

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"The Secret Agents Who Stake Out the Ugliest Corners of the Internet"

http://www.theatlantic.com/technology/archive/2015/07/secret-service-online-threat-president/399179/

A team tasked with protecting the president of the United States is constantly sifting through hateful online comments to find would-be assassins or terrorists.

In a recent decision for the case Elonis v. United States, about a man accused of threatening his wife on Facebook, the Supreme Court avoided establishing any clear test for how to identify true threats online. Their decision to dodge the issue leaves not just the Secret Service but everyone who is the victim of online harassment to figure out how to draw the line between true threats and free speech on the Internet.

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"Why the Dean of Harvard Medical School Tweets"
http://blogs.wsj.com/experts/2015/09/29/why-the-dean-of-harvard-medical-school-tweets/

By tweeting, you are entering the Wild West of social media

Tweeting isn't a strategy of risk minimization for sure!

by following interesting people who make thoughtful comments and link to interesting articles, I learn a great deal that might otherwise pass me by

[LinksEtc]

Tweeted by @HeartSisters

@colleen_young WTF is right, Colleen. It's a post by surgeon @HopeAmantine kevinmd.com/blog/2015/07/a... Now she says: Just kidding! @AliceDreger

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"A lesson in the OR that prepared this doctor to be a surgeon"
http://www.kevinmd.com/blog/2015/07/a-lesson-in-the-or-that-prepared-this-doctor-to-be-a-surgeon.html

My attending asked, "Why are you being so dainty with your dissection there?"

He took his scissors and incredibly, before my eyes, and with no warning or preparation of any kind, cut a one-inch hole in the cava.

&


@HeartSisters

Is @HopeAmantine what happens when docs use pseudonyms? e.g. "Should Doctors Use Their Real Names on Social Media?" ethicalnag.org/2013/05/10/ano...

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"Should doctors use their real names on social media?"
http://ethicalnag.org/2013/05/10/anonymous-doctors-social-media/

let us remember the wisdom of Dr. Farris Timimi, Medical Director of the Mayo Clinic Center for Social Media

His brilliant 12-word social media guide for health care professionalism is:

"Don't Lie, Don't Pry, Don't Cheat, Can't Delete, Don't Steal, Don't Reveal"

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Tweeted by @YoniFreedhoff

"An appalling tale of surgical "teaching" in the operating room"

http://scienceblogs.com/insolence/2015/07/09/an-appalling-tale-of-surgical-teaching-in-the-operating-room/#.VZ5jxL1K3WU.twitter

It's also impossible not to note that it was only after the criticism came raining down on her on Twitter did Dr. Amantine claim that the story was fictional. Maybe it was fictional (it does have the air of being apocryphal about it), but if it was fictional she sure didn't give any indication until after the shitstorm got really intense. Then she deleted her blog (which is gone as of this writing, as is her Twitter account).

[LinksEtc]

"What's the Couch Got to Do With It?
The low-down on lying down on the couch in psychoanalysis."

https://www.psychologytoday.com/blog/headshrinkers-guide-the-galaxy/201404/whats-the-couch-got-do-it

You wrote that the couch opens people up as opposed to their sitting in a chair facing you.

Free association is the procedure in which the patient says everything that comes to mind—without censoring, without filtering, and without judgment.

What is most important is to create a safe space

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Tweeted by @ElaineSchattner


"Days of Our Digital Lives"
http://www.nytimes.com/2015/07/05/opinion/sunday/seth-stephens-davidowitz-days-of-our-digital-lives.html?smid=tw-share

WE search for doctors at 8:20 a.m., recipes at 4:52 p.m. and enlightenment at 3:16 a.m. So far, the Google data that analysts have worked with has been daily, weekly or annual, but Google recently released the same anonymous, aggregate data down to the minute.

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Tweeted by @DrVes

"There Is No More Social Media -- Just Advertising"
http://adage.com/article/digitalnext/social-media-advertising/297841/?utm_content=buffer221df&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

For a while, it really felt like brands were beginning to embrace online communities as a way to directly connect with people as human beings. But over the years, that idealistic vision of genuine two-way exchange eroded.

Twitter's Dick Costolo recently said that ads will "make up about one in 20 tweets."

[LinksEtc]

Tweeted by @PAallergy

Medicine is not social media... medical problems cannot be solved in 140 character / seconds or less.

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Tweeted by @AllergyKidsDoc

But what about with a fancy website that has dozens of testimonials and a long list of research 'publications'? twitter.com/PAallergy/stat...

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Docs helping patients to surf the internet


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Tweeted by @KoontzOncology

@AllergyKidsDoc Yes, it really says something when, as healthcare professionals, we have to compete with social media outlets

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Tweeted by @Pmaxwellfnp

@AllergyKidsDoc which is why you should get MEDICAL ADVICE from 'the pro's", and recipes/memes/puppy fotos/restaurant info on Facebook

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Re: Tweet response for @GilmerHealthLaw

Tweeted by @trishgreenhalgh

"Six 'biases' against patients and carers in evidence-based medicine"
http://www.biomedcentral.com/1741-7015/13/200

Examples from these studies included doctors dismissing symptoms that were not explained by blood tests, ignoring patient experience that did not correspond to textbook descriptions, using medical jargon to re-establish a position of power, and actively withholding information or services. Patients learnt to conceal their own expertise and treatment decisions in order to comply with medical expectations and to avoid professionals becoming "patronizing or angry" [50], [51]. All these might be considered as examples of what has been called 'epistemic injustice' – that is, the numerous and often subtle ways in which patients may be dismissed in their specific capacity as knowers [52].

Herein lies a paradox: clinician-researchers are building an experimental science of how they can intervene in patients' illnesses [84], while patients themselves are building collaborative communities aimed at supporting and informing one another

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Tweeted by @Asthma3Ways

Cool! Future? Twitter discussions on med topics being published in medical journals. @LancetRespirMed @drstanbrook twitter.com/ATS_BSHSR/stat...

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"Vitamin D supplementation in patients with COPD: Twitter discussions on behalf of the University of Toronto Respirology and Sleep Journal Club"

http://www.thelancet.com/journals/lanres/article/PIIS2213-2600(15)00284-2/fulltext?utm_content=buffere317e&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

We had the pleasure of discussing the ViDiCO trial1 with the lead author Adrian Martineau at our Twitter-based journal club on May 28, 2015. ViDiCO assessed whether vitamin D supplementation reduced the incidence of moderate or severe exacerbations and upper respiratory infections in patients with chronic obstructive pulmonary disease (COPD) versus placebo.

[LinksEtc]

Tweeted by @ScioDC

"ScioDC #11: The Powers and Limitations of #socialgov: Social Media and Government Scientists"
http://dc.scienceonline.com/2015/07/06/sciodc-11-the-powers-and-limitations-of-socialgov-social-media-and-government-scientists/

Join us for our next ScioDC event on Wednesday July 22 at 6 PM as we discuss the opportunities and pitfalls of being a scientist on social media who works for a federal agency

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Tweeted by @DrRitaMc

Looks like the "muzzled scientist" emoji is quite timely... @picardonhealth ottawacitizen.com/news/local-new... twitter.com/VanObserver/st...

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"Our own emojis, designed for life in Ottawa"
http://ottawacitizen.com/news/local-news/our-own-emojis-designed-for-life-in-ottawa

Muzzled Scientist: This emoji is useful for scientists or researchers who have made important discoveries in the name of science or history but are not permitted by the federal government to speak freely about them. Use at your own risk.

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"Another federal scientist fired in Harper's ongoing war on science"
http://www.nationalobserver.com/2015/07/20/opinion/another-federal-scientist-fired-harpers-ongoing-war-science

No scientist paid with public funds should be compelled to filter the information they collect away from the public simply to keep our politicians happy. We all have the right to decide for ourselves what information is of value. That our government appears to be working so very hard to keep information from us should be deeply troubling to all Canadians who value their democracy and the roles of our institutions within it.

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"The nerd's guide to learning everything online"
http://www.ted.com/talks/john_green_the_nerd_s_guide_to_learning_everything_online


This talks about "communities of learners" ... I know that FAS is primarily a support group, but especially in the past, I have felt part of a "community of learners".   Thanks for that.   

[LinksEtc]

"Healthcare social media: What's in it for patients?"
http://www.medicalpracticeinsider.com/best-practices/healthcare-social-media-whats-it-patients

While providers may be supportive of social media as a tool for patients to build communities, reduce isolation and expand their support networks, concerns have also been raised.

Some physicians are worried that the opinions of a vocal minority on physician rating sites could impact their practices.

Others are more apprehensive about the creation of the "expert patient."

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Tweeted by @SeattleMamaDoc

Sing it, @ArthurCaplan ! "Are Evil People Influencing Your Patients?" medscape.com/viewarticle/84... We must curate health info, we must be online

Medscape Business of Medicine > Ethics: Today's Hot Topics
Are Evil People Influencing Your Patients?
Arthur L. Caplan, PhD
Disclosures June 24, 2015

(I don't link to medscape - privacy reasons - but you can google)

Belle, an Australian woman somewhere in her 20s (she doesn't even tell the truth about that), had a very active website where she claimed that she had beaten multiple forms of cancer by eating right and living healthy.

But Belle did not have cancer and she was full of malarkey.

It is time for doctors to get into this with their patients. You need to ask them what they are looking at on social media.

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Re: Living with Food Allergies, 2013 and on

Do your docs know about your online activities?  Do you talk about it or is it kind of a forbidden topic? 

[ninjaroll]

I only use Facebook as an investigation tool, so bear in mind I don't use it as social media.  These are some links from a criminal investigation training on Facebook.  The take away here is Facebook's facial recognition surpasses public sector ability because people upload pictures from multiple angles (as opposed to a single, straight on ID photo).  Ears tend to be a unique characteristic so the combination of the multiple angles, ages, lighting and ears, and the disclosure of your contacts helps identify people who may not even be posting pictures of themselves on Facebook.

http://www.extremetech.com/extreme/178777-facebooks-facial-recognition-software-is-now-as-accurate-as-the-human-brain-but-what-now

http://www.theverge.com/2014/7/7/5878069/why-facebook-is-beating-the-fbi-at-facial-recognition

http://www.theverge.com/2014/3/17/5518808/facebooks-working-on-facial-verification-thats-nearing-human-levels

[LinksEtc]

This seems like a nice thing to wrap this thread up a bit ....


"Brené Brown: The power of vulnerability"
https://www.ted.com/talks/brene_brown_on_vulnerability#t-834007


3:18

Connection is why we're here.  It's what gives purpose and meaning to our lives.

12:38

I know that vulnerability is kind of the core of shame and fear and our struggle for worthiness, but it appears that it's also the birthplace of joy of creativity of belonging of love and I think I have a problem

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"Why Your Doctor Won't Friend You On Facebook"
http://www.npr.org/sections/health-shots/2015/08/25/434604425/why-your-doctor-won-t-friend-you-on-facebook?utm_campaign=storyshare&utm_source=facebook.com&utm_medium=social

In a recent study published in the Journal of General Internal Medicine, almost 20 percent of patient respondents reported trying to contact doctors through Facebook, and almost 40 percent through email.

I "get it" ... I think most FASers "get it" ... why FB would generally not be a good idea, but

I think this may be another case of "the curse of knowledge" ... docs are trained as to what is considered appropriate wrt doc-pt relationships ...

most patients aren't ... lots of people "friend" almost anybody they have a relationship with ... it probably feels quite natural to some people ... cool, my doc is on FB.

I think patients could use a little education/guidance.

[LinksEtc]

.

[LinksEtc]

I created "Links" for the sesame labeling effort and my part in that feels done.


Soooo, letting go of "Links" is not an easy thing to do. I think with SM, there are often kind of life cycles ... you have a purpose, you have an online id, and it kind of runs its course.  Like with Boo ... she was here, she was FAB, and then she seemed "done".

I'm not going to delete "Links" in case I have to edit, or in case somebody wants to contact me or needs my help, but taking a small break has reinforced that "pretty much done feeling" that I was having before.



Many 

[rebekahc]

Links, I just wanted to let you know how much I've appreciated you!  Keep in touch! 

[LinksEtc]

I may pop in from time to time

yeah,   


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Tweeted by @paulhodgkin

"Paul Hodgkin: The dogs that don't bark are the most difficult to hear"
http://blogs.bmj.com/bmj/2016/04/18/paul-hodgkin-the-dogs-that-dont-bark-are-the-most-difficult-to-hear/

And so it is with health systems—the villain is us, the clinicians and managers. It is us who, in our hearts, don't want those patients to begin barking, to engage with each other, to hunt in packs.

Along comes social media. Suddenly the dogs are barking and the patients are talking together anyway, about all kinds of stuff—including us.

[LinksEtc]

"Don't Post About Me on Social Media, Children Say"
http://well.blogs.nytimes.com/2016/03/08/dont-post-about-me-on-social-media-children-say/

In most cases, parents and children agreed — don't text and drive; don't be online when someone wants to talk to you. But there was one surprising rule that the children wanted that their parents mentioned far less often: Don't post anything about me on social media without asking me.

our children will grow into teenagers and adults who want to control their digital identities

[LinksEtc]

Tweeted by @LisaRosenbaum17

Among my many fave @jonronson lines: "We tend to relentlessly define people by the worst mistake they ever made."

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Monica Lewinsky: 'The shame sticks to you like tar'
https://www.theguardian.com/technology/2016/apr/16/monica-lewinsky-shame-sticks-like-tar-jon-ronson?CMP=twt_gu

But when something hits a core trauma – I actually got really retriggered.

The reason why she finally agreed to meet me, despite her anxieties, is that the Guardian is highlighting the issue of online harassment through its series The web we want – an endeavour she approves of. "Destigmatising the shame around online harassment is the first step," she says. "Well, the first step is recognising there's a problem."

she's a respected and perceptive anti-bullying advocate

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The Web We Want
https://www.theguardian.com/technology/series/the-web-we-want